Clinical trials: Pediatric Palliative Care
Palliative Care, Micronutrients
Micronutrient Status in Pediatric Palliative Care
The goal of this observational study is to determine the micronutrient levels in patients in the Pediatric Palliative Care Clinic.
- Conditions
- Palliative Care, Micronutrients, Pediatric
- Trial name
- NCT06146452
- Testing
- Not
- Where
- Turkey (Türkiye)
- Volunteers
- 249 people, healthy volunteers welcome
- Sponsor
- Dr. Behcet Uz Children's Hospital
Palliative Care Education
Creating a Flexible Curriculum Tool for Pediatric Palliative Care Rotating Learners
The goal of this clinical trial is to learn if a new educational tool can improve the training and educational process for learners who will already be taking part in the palliative care rotation at Children's National Hospital.
- Trial name
- NCT07402837
- Testing
- Rotation Using Flexible Education Tool, Standard Palliative Care Education
- Where
- United States
- Volunteers
- 30 people
- Sponsor
- Children's National Research Institute
Cancer
FAmily CEntered (FACE) Advance Care Planning for Teens With Cancer
Advance Care Planning (ACP) prepares patients and their loved ones for future health care decisions, including end-of-life decisions.
- Trial name
- FACE (NCT01670461)
- Testing
- FACE, Standard of Care (SOC) Control
- Where
- United States
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- Maureen Lyon
Stage IV Breast Cancer, Stage IV Pancreatic Cancer
Prospective Cohort Study Depending on the Use of Palliative Care for Advanced Stage of Cancer Patients
This study evaluates the change of quality of life, treatment decision and utilization of health care depending on the use of palliative care in advanced cancer patients by a prospective cohort study.
- Conditions
- Stage IV Breast Cancer, Stage IV Pancreatic Cancer, Stage IV Colon Cancer, Stage IV Gastric Cancer
- Trial name
- NCT03222258
- Testing
- Early palliative care, Routine hospice care
- Where
- 15 sites in South Korea
- Volunteers
- 444 people
- Sponsor
- Seoul National University Hospital
Cognitive Impairment
Family-Centered Songwriting in Pediatric Palliative Care
This study evaluates the feasibility and efficacy of a family-centered songwriting intervention for cognitively-impaired children referred to a palliative care service.
- Trial name
- NCT04198038
- Testing
- Songwriting with licensed music therapist
- Where
- United States
- Volunteers
- 25 people
- Sponsor
- Vanderbilt University
HIV
Longitudinal Pediatric Palliative Care: Quality of Life & Spiritual Struggle
Our goal is to advance palliative care to adolescents and their families. We hope our study will decrease suffering (psychological, spiritual, physical) and increase quality of life (QOL).
- Trial name
- FACE (NCT01289444)
- Testing
- FAmily CEntered (FACE) ACP, Healthy Living Control
- Where
- 5 sites in United States
- Volunteers
- 216 people
- Sponsor
- Maureen Lyon
Pediatric Cancer, Palliative
Home Visit Intervention in Pediatric Palliative Care
A randomized controlled trial to compare the quality of life between participants who were given palliative care (a 3-month home visit) and those who were not (intervention vs control group) was conducted.
- Trial name
- NCT04067687
- Testing
- Palliative home visit
- Where
- Indonesia
- Volunteers
- 60 people
- Sponsor
- Universitas Indonesia
Encephalopathy, Cerebral Palsy
Initiating Pediatric Palliative Care in ACT Group 4
Due to the wide range of diagnoses encountered in pediatric palliative care, the Association for Children's Palliative Care (ACT) and the Royal College of Paediatrics and Child Health (RCPCH) have developed a classification of…
- Conditions
- Encephalopathy, Cerebral Palsy, Cerebral Malformation, Traumatic Head Injury
- Trial name
- StartSPP (NCT06273267)
- Testing
- Collection of data from the patient's medical file
- Where
- France
- Volunteers
- 126 people
- Sponsor
- Assistance Publique - Hôpitaux de Paris
Cancer
Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer
To test the efficacy of FACE-TC on key outcomes, the investigators propose using an intent-to-treat, longitudinal, prospective, multi-site, randomized controlled trial (RCT) design.
- Trial name
- FACE-TC (NCT02693665)
- Testing
- FAmily CEntered Advance Care Planning for Teens with Cancer
- Where
- 4 sites in United States
- Volunteers
- 260 people
- Sponsor
- Maureen Lyon
Quality of Life Outcomes
Palliative Care Integration in Pediatric Oncology Phase 1 Clinical Trials
Although cure rates continue to rise, one in five children with cancer still die from their disease, so new therapies are urgently needed.
- Trial name
- NCT07696065
- Testing
- Pediatric Palliative Care Consultation
- Where
- 3 sites in United States
- Volunteers
- 30 people
- Sponsor
- Phoenix Children's Hospital
Quality of Life
Exploring The Role Of Palliative Care In Phase 1 Enrolled Pediatric Oncology Patients
This study is being conducted to learn more about the patient/family experience when opting to enroll in Phase I clinical trials and their quality of life (QOL) while receiving experimental therapy.
- Trial name
- NCT05412563
- Where
- 2 sites in United States
- Volunteers
- 31 people
- Sponsor
- St. Jude Children's Research Hospital
Pediatric Cancers
Palliative Care and Symptom Management for the Pediatric Oncology Patient
The goal of this study is to learn about the communication, decision-making, symptom management, emotional adjustment, and spiritual needs of parents and pediatric patients treated at the Children's Cancer Hospital at M. D.
- Trial name
- NCT00675467
- Testing
- Focus Group - Parent/Caregiver, Focus Group - Pediatric Patient
- Where
- United States
- Volunteers
- 13 people
- Sponsor
- M.D. Anderson Cancer Center
Care Giver, Recurrent Malignant Neoplasm
PCRC-Supported Legacy Intervention in Pediatric Palliative Care
This trial studies how well a web-based legacy intervention works in improving the quality of life in caregivers and younger patients with cancer that has come back (recurrent) or does not respond to treatment (refractory).
- Conditions
- Care Giver, Recurrent Malignant Neoplasm, Refractory Malignant Neoplasm
- Trial name
- NCT04059393
- Testing
- Internet-Based Intervention, Best Practice, Quality-of-Life Assessment
- Where
- United States
- Volunteers
- 300 people, healthy volunteers welcome
- Sponsor
- Vanderbilt-Ingram Cancer Center
Cancer, Congenital Anomalies
Estimating the Global Need for Palliative Care for Children
A cross-sectional analysis of prevalence data from a stratified sample of 23 countries used to estimate the global need for palliative care for children aged 0-19 years.
- Conditions
- Cancer, Congenital Anomalies, Cardiovascular Disease, HIV
- Trial name
- NCT02553148
- Testing
- Need for children's palliative care
- Where
- United States
- Volunteers
- 18,837,613 people, healthy volunteers welcome
- Sponsor
- International Children's Palliative Care Network
Solid Tumor, Hematological Malignancies
Nurse-initiated Conversations for Early Integration of Palliative Care in Pediatric Oncology
This study aims to develop and implement a pediatric palliative care (PPC) program. It is an open-label, randomized trial (2:1 randomization) in pediatric oncology department of Children's Hospital of Fudan University.
- Trial name
- NiCE (NCT05306509)
- Testing
- NiCE, Routine PPC
- Where
- China
- Volunteers
- 120 people
- Sponsor
- Children's Hospital of Fudan University
Complex Care, Medical Complexity
Complexity in Health, Education, and Social Support for Children and Young People With Life-limiting Conditions.
Children and young people (CYP) with life-limiting conditions represent a growing population with complex care needs that span health, education, and social care systems.
- Conditions
- Complex Care, Medical Complexity, Pediatrics, Life-limiting Illness
- Trial name
- CHESS (NCT07102433)
- Testing
- Children and young people with life-limiting conditions, their parents/carers, and professionals across healthcare, education, and social care sectors.
- Where
- 5 sites in United Kingdom
- Volunteers
- 170 people
- Sponsor
- King's College London
Parental Decision Making for Seriously Ill Children
Decision Making in Serious Pediatric Illness
This study will look at a cohort of parents whose children are confronting life-threatening illnesses in intensive care, palliative care, and complex care settings, to test whether parents with higher levels of hopeful patterns…
- Trial name
- DSPI (NCT01163136)
- Where
- United States
- Volunteers
- 358 people
- Sponsor
- Children's Hospital of Philadelphia
Nursing Caries, Palliative Care
Trend Analysis of the Service of Pediatric Palliative Care
Palliative care has received considerable attention in Taiwan in recent years. The relevant research has been widely conducted for palliative care in adult population.
- Conditions
- Nursing Caries, Palliative Care, Pediatric Population, Pediatric Cancer
- Trial name
- NCT03925831
- Where
- Taiwan
- Volunteers
- 5,000 people
- Sponsor
- National Taiwan University Hospital
Pediatric Palliative Care
Analysis of the Hospital Node in the Management of Acute Events of Patients Referred to Pediatric Palliative Care
This study aims to analyze the role of the hospital node in the acute event management of pediatric patients referred to Pediatric Palliative Care.
- Trial name
- NO_SCUSE (NCT06797921)
- Where
- 7 sites in Italy
- Volunteers
- 350 people
- Sponsor
- IRCCS Azienda Ospedaliero-Universitaria di Bologna
Pediatric Cancer
Nurse-led Transitional Care to Improve Symptom Management in Childhood Cancer Survivors
This study aims to evaluate the feasibility and preliminary effectiveness of a nurse-facilitated interdisciplinary transitional care programme, based on the Omaha system, for Chinese childhood cancer survivors (CCSs) and their…
- Trial name
- NCT07273682
- Testing
- Counseling based on Omaha system, Usual Care
- Volunteers
- 68 people
- Sponsor
- The Hong Kong Polytechnic University