Clinical trials: Pediatric Palliative Care
Pediatric Palliative Care
Analysis of the Hospital Node in the Management of Acute Events of Patients Referred to Pediatric Palliative Care
This study aims to analyze the role of the hospital node in the acute event management of pediatric patients referred to Pediatric Palliative Care.
- Trial name
- NO_SCUSE (NCT06797921)
- Where
- 7 sites in Italy
- Volunteers
- 350 people
- Sponsor
- IRCCS Azienda Ospedaliero-Universitaria di Bologna
Pediatric Palliative Care
Prospective Home-Based Palliative Care and Hospice Study
The purpose of this study is to test the hypothesis that the addition of home-based hospice and palliative care (HBHPC) will provide a reduction in health care utilization, improve quality of life, and facilitate goal-concordant…
- Trial name
- NCT06362239
- Testing
- Study Surveys
- Where
- United States
- Volunteers
- 250 people
- Sponsor
- Steven Smith
Tracheostomy Infection
Musical-animated Toys and Audio Books in Pediatric Palliative Care.
The aim of this study was to determine the effect of audio book and musical-moving toy on fear, anxiety and pain in tracheostomy care of children in palliative clinic.
- Trial name
- NCT06121440
- Testing
- Listening to audiobook, Playing musical-moving toy
- Where
- Turkey (Türkiye)
- Volunteers
- 16 people
- Sponsor
- Gamze Akay
Machine Learning, Cardiovascular Outcome
PACT Involvement in Cardiology Patients
The goal of this trial is to determine the effectiveness of a machine-learning (ML) model predicting a serious cardiac event within the next three months, when compared pre- versus post-deployment, in pediatric cardiac…
- Conditions
- Machine Learning, Cardiovascular Outcome, Pediatric Palliative Care, Pediatric Cardiology
- Trial name
- NCT06886529
- Testing
- ML-based intervention
- Where
- Canada
- Volunteers
- 1,000 people
- Sponsor
- The Hospital for Sick Children
Pediatrics
Digital-storytelling Intervention for Rural-dwelling Children
The overall purpose of this study is to test the feasibility of a web-based storytelling intervention for rural-dwelling children (ages 8-17) with serious advanced illnesses.
- Trial name
- NCT04665479
- Testing
- Web-based legacy-making intervention through digital storytelling
- Where
- United States
- Volunteers
- 50 people
- Sponsor
- Vanderbilt University
Palliative Care
CALLiNGS Protocol: Care Across Locations Longitudinally in Navigation of Goals and Symptoms
The study intends to explore feasibility, acceptability, and quality of life outcomes from using web-conferencing technology to connect a hospital-based interdisciplinary pediatric palliative care with statewide field-based…
- Trial name
- CALLiNGS (NCT03999957)
- Testing
- Telehealth web conferencing
- Where
- 2 sites in United States
- Volunteers
- 30 people
- Sponsor
- University of Nebraska
Cancer, Congenital Anomalies
Estimating the Global Need for Palliative Care for Children
A cross-sectional analysis of prevalence data from a stratified sample of 23 countries used to estimate the global need for palliative care for children aged 0-19 years.
- Conditions
- Cancer, Congenital Anomalies, Cardiovascular Disease, HIV
- Trial name
- NCT02553148
- Testing
- Need for children's palliative care
- Where
- United States
- Volunteers
- 18,837,613 people, healthy volunteers welcome
- Sponsor
- International Children's Palliative Care Network
Stage IV Breast Cancer, Stage IV Pancreatic Cancer
Prospective Cohort Study Depending on the Use of Palliative Care for Advanced Stage of Cancer Patients
This study evaluates the change of quality of life, treatment decision and utilization of health care depending on the use of palliative care in advanced cancer patients by a prospective cohort study.
- Conditions
- Stage IV Breast Cancer, Stage IV Pancreatic Cancer, Stage IV Colon Cancer, Stage IV Gastric Cancer
- Trial name
- NCT03222258
- Testing
- Early palliative care, Routine hospice care
- Where
- 15 sites in South Korea
- Volunteers
- 444 people
- Sponsor
- Seoul National University Hospital
Solid Tumor, Hematological Malignancies
Nurse-initiated Conversations for Early Integration of Palliative Care in Pediatric Oncology
This study aims to develop and implement a pediatric palliative care (PPC) program. It is an open-label, randomized trial (2:1 randomization) in pediatric oncology department of Children's Hospital of Fudan University.
- Trial name
- NiCE (NCT05306509)
- Testing
- NiCE, Routine PPC
- Where
- China
- Volunteers
- 120 people
- Sponsor
- Children's Hospital of Fudan University
Pediatric Brain Tumor
Compassionate Treatment in Children With Brain Tumors With the Cytotron®
This is a prospective case-control study. This study is expected to last for approximately 12 months, comprised of 4-8 weeks of enrollment period, 28 days of treatment and 6 months of follow up.
- Trial name
- NCT03577600
- Testing
- QMRT with the Cytotron®
- Where
- Mexico
- Sponsor
- Hospital Infantil de Mexico Federico Gomez
Advanced Cancer
The PediQUEST Response Intervention Study
PediQUEST Response proposes a new system of care that expects to improve quality of life in children, adolescents, and young adults with advanced cancer and their parents.
- Trial name
- NCT03408314
- Testing
- PediQUEST Response, Usual Cancer Care
- Where
- 6 sites in United States
- Volunteers
- 194 people
- Sponsor
- Joanne Wolfe, MD, MPH
Quality of Life Outcomes
Palliative Care Integration in Pediatric Oncology Phase 1 Clinical Trials
Although cure rates continue to rise, one in five children with cancer still die from their disease, so new therapies are urgently needed.
- Trial name
- NCT07696065
- Testing
- Pediatric Palliative Care Consultation
- Where
- 3 sites in United States
- Volunteers
- 30 people
- Sponsor
- Phoenix Children's Hospital
Breakthrough Pain, Palliative Medicine
Paediatric Breakthrough Pain Assessment
Many children and young people with life-limiting and life-threatening illnesses get sudden bursts of pain called breakthrough pain. At the moment, there aren't any good ways to measure this pain in children and young people.
- Conditions
- Breakthrough Pain, Palliative Medicine, Oncology Pain, Pediatric ALL
- Trial name
- BEACON (NCT06790719)
- Volunteers
- 210 people, healthy volunteers welcome
- Sponsor
- University of Southampton
Pediatric Cancer, Palliative
Home Visit Intervention in Pediatric Palliative Care
A randomized controlled trial to compare the quality of life between participants who were given palliative care (a 3-month home visit) and those who were not (intervention vs control group) was conducted.
- Trial name
- NCT04067687
- Testing
- Palliative home visit
- Where
- Indonesia
- Volunteers
- 60 people
- Sponsor
- Universitas Indonesia
Congenital Disorders
Palliative Care of Children With End-Stage Heart Failure
Palliative care in pediatric oncology and neurology is well described in the literature. There is a lack of information on the care of children terminally ill due to heart failure.
- Trial name
- NCT00327782
- Where
- United States
- Sponsor
- Children's Healthcare of Atlanta
Anxiety State, Pain
Medical Clowns for Pediatric Blood Draw
The research objective of this proposed clinical trial is to determine the efficacy of a medical clowning intervention for pediatric patients undergoing venipuncture.
- Conditions
- Anxiety State, Pain, Stress
- Trial name
- NCT03671317
- Testing
- Medical Clowning
- Where
- United States
- Volunteers
- 60 people
- Sponsor
- University of Southern California
Nursing Caries, Palliative Care
Trend Analysis of the Service of Pediatric Palliative Care
Palliative care has received considerable attention in Taiwan in recent years. The relevant research has been widely conducted for palliative care in adult population.
- Conditions
- Nursing Caries, Palliative Care, Pediatric Population, Pediatric Cancer
- Trial name
- NCT03925831
- Where
- Taiwan
- Volunteers
- 5,000 people
- Sponsor
- National Taiwan University Hospital
End of Life, Communication
Informational Meetings for Planning and Coordinating Treatment
This prospective cluster-randomized trial examines the efficacy of a novel communication intervention delivered by trained physician and nurse dyads to parents of children with cancer within the clinicians' practice, to foster…
- Conditions
- End of Life, Communication, Cancer Metastatic
- Trial name
- IMPACT (NCT04330833)
- Testing
- Novel Communication Intervention, Enhanced Usual Care Parent Education
- Where
- 7 sites in United States
- Volunteers
- 111 people
- Sponsor
- Indiana University
HIV
Longitudinal Pediatric Palliative Care: Quality of Life & Spiritual Struggle
Our goal is to advance palliative care to adolescents and their families. We hope our study will decrease suffering (psychological, spiritual, physical) and increase quality of life (QOL).
- Trial name
- FACE (NCT01289444)
- Testing
- FAmily CEntered (FACE) ACP, Healthy Living Control
- Where
- 5 sites in United States
- Volunteers
- 216 people
- Sponsor
- Maureen Lyon
Pediatric Cancers
Palliative Care and Symptom Management for the Pediatric Oncology Patient
The goal of this study is to learn about the communication, decision-making, symptom management, emotional adjustment, and spiritual needs of parents and pediatric patients treated at the Children's Cancer Hospital at M. D.
- Trial name
- NCT00675467
- Testing
- Focus Group - Parent/Caregiver, Focus Group - Pediatric Patient
- Where
- United States
- Volunteers
- 13 people
- Sponsor
- M.D. Anderson Cancer Center