Clinical trials: Advance Care Planning
Trisomy 13 Syndrome, Arthrogryposis Congenita Multiplex With Intestinal Atresia
Palliative Care Needs of Children With Rare Diseases and Their Families
The palliative care needs of family caregivers of children with rare diseases and their children are largely unmet, including the need for support to prepare for future medical decision making.
- Conditions
- Trisomy 13 Syndrome, Arthrogryposis Congenita Multiplex With Intestinal Atresia, Asparagine Synthetase Deficiency, CHARGE Syndrome
- Trial name
- FACE-Rare (NCT06938542)
- Testing
- Family Centered pediatric palliative care for family caregivers of children with rare diseases.
- Where
- United States
- Volunteers
- 480 people, healthy volunteers welcome
- Sponsor
- Children's National Research Institute
Terminal Illness, Heart Arrest
End-of-life Practices in 2019 vs. 2014
In 2014, the authors conducted a survey of key opinion leaders on ethical resuscitation practices in 31 European Countries. The authors administered a comprehensive questionnaire to 1-2 "experts" from each country…
- Conditions
- Terminal Illness, Heart Arrest, Ethics, Narrative
- Trial name
- NCT04078815
- Where
- 2 sites in Belgium, Greece
- Volunteers
- 84 people
- Sponsor
- University of Athens
Advance Care Planning
EFFECTIVENESS: Hopewell Hospitalist: A Video Game Intervention to Increase Advance Care Planning by Hospitalists
Hopewell Hospitalist is a theory-based adventure video game designed to increase the likelihood that a physician will engage in an advance care planning (ACP) conversation with a patient over the age of 65.
- Trial name
- NCT04881968
- Testing
- Hopewell Hospitalist Video Game
- Where
- United States
- Volunteers
- 1,261 people, healthy volunteers welcome
- Sponsor
- Dartmouth-Hitchcock Medical Center
Post Partum
Advance Supply of Emergency Contraception Compared to Routine Postpartum Care in Teens
This is a pilot randomized controlled trial to assess the effects of advanced supply of emergency contraception versus routine care in a teen postpartum population.
- Trial name
- NCT00433004
- Testing
- Plan B (Levonorgestrel)
- Where
- United States
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- University of Pennsylvania
HIV
Longitudinal Pediatric Palliative Care: Quality of Life & Spiritual Struggle
Our goal is to advance palliative care to adolescents and their families. We hope our study will decrease suffering (psychological, spiritual, physical) and increase quality of life (QOL).
- Trial name
- FACE (NCT01289444)
- Testing
- FAmily CEntered (FACE) ACP, Healthy Living Control
- Where
- 5 sites in United States
- Volunteers
- 216 people
- Sponsor
- Maureen Lyon
Advance Care Planning, Nursing Homes
Effect of Advance Care Planning to Improve Patient-centered Care of Nursing Home Residents
Advance Care Planning (ACP) is an approach to support individuals in understanding and sharing their values, treatment goals, and preferences regarding future medical care.
- Trial name
- BEVOR (NCT04333303)
- Testing
- Implementation of a complex regional Advance Care Planning program
- Where
- 4 sites in Germany
- Volunteers
- 5,927 people, healthy volunteers welcome
- Sponsor
- Heinrich-Heine University, Duesseldorf
Parkinson Disease, Parkinsonism
Advance Care Planning and Care Coordination for People With Parkinson's Disease
Background: People with Parkinson's disease (PD), including parkinsonisms, experience complex motor and non-motor symptoms, which become more hindering in the advanced stages of PD.
- Trial name
- PD_Pal (NCT05954013)
- Testing
- PD_Pal intervention
- Where
- 7 sites in Austria, Estonia and 5 more
- Volunteers
- 189 people, healthy volunteers welcome
- Sponsor
- Radboud University Medical Center
Advance Care Planning
EFFICACY: Hopewell Hospitalist: A Video Game Intervention to Increase Advance Care Planning by Hospitalists
Hopewell Hospitalist is a theory-based adventure video game designed to increase the likelihood that a physician will engage in an advance care planning (ACP) conversation with a patient over the age of 65.
- Trial name
- NCT04557930
- Testing
- Hopewell Hospitalist Video Game
- Where
- United States
- Volunteers
- 163 people, healthy volunteers welcome
- Sponsor
- Dartmouth-Hitchcock Medical Center
Decision Making, Terminal Illness
Organ Donation and End-of-life Decisions
Variation in organ donation after brain death (DBD) per million population varies markedly between countries, within country regions, between and within intensive care units (ICU).
- Conditions
- Decision Making, Terminal Illness, Tissue and Organ Procurement
- Trial name
- NCT04131140
- Where
- Sweden
- Volunteers
- 12,072 people
- Sponsor
- Swedish Intensive Care Registry
Neoplasms
An Exploratory Study of the Use of Five Wishes as a Tool for Advanced Care Planning in Young Adults With Metastatic, Recurrent, or Progressive Cancer or HIV Infection
Background: Few resources exist for helping adolescents and young adults with cancer or HIV disease understand their changing physical, emotional and social needs when treatment is no longer effective.
- Trial name
- NCT01445145
- Where
- 2 sites in United States
- Volunteers
- 70 people
- Sponsor
- National Cancer Institute (NCI)
Cancer
FAmily CEntered (FACE) Advance Care Planning for Teens With Cancer
Advance Care Planning (ACP) prepares patients and their loved ones for future health care decisions, including end-of-life decisions.
- Trial name
- FACE (NCT01670461)
- Testing
- FACE, Standard of Care (SOC) Control
- Where
- United States
- Volunteers
- 60 people, healthy volunteers welcome
- Sponsor
- Maureen Lyon
HIV Infections
Family Centered Advanced Care Planning for Adolescents With HIV/AIDS and Their Families
This study will examine the efficacy of Family Centered Advance Care Planning in enhancing quality of life, integrating effective end-of-life care, and preventing depression and anxiety among HIV infected adolescents and their…
- Trial name
- NCT00723476
- Testing
- Family Centered Advanced Care Planning (FCACP) sessions, Health education control sessions
- Where
- United States
- Volunteers
- 82 people, healthy volunteers welcome
- Sponsor
- Maureen Lyon
Older Adults, Advance Care Planning
Motivational Interviewing to Enhance Advance Care Planning for Older Adults and Caregivers After Emergency Visits
This study aims to evaluate the effectiveness of a motivational interviewing (MI) intervention in enhancing advance care planning (ACP) among older adults who have visited the Emergency Room (ER) in the past six months and their…
- Conditions
- Older Adults, Advance Care Planning, Advance Directives, Family Members
- Trial name
- NCT06090240
- Testing
- Dyadic MI-ACP intervention, Elderly alone MI-ACP
- Where
- Hong Kong
- Volunteers
- 300 people, healthy volunteers welcome
- Sponsor
- The University of Hong Kong
Cancer
Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer
To test the efficacy of FACE-TC on key outcomes, the investigators propose using an intent-to-treat, longitudinal, prospective, multi-site, randomized controlled trial (RCT) design.
- Trial name
- FACE-TC (NCT02693665)
- Testing
- FAmily CEntered Advance Care Planning for Teens with Cancer
- Where
- 4 sites in United States
- Volunteers
- 260 people
- Sponsor
- Maureen Lyon
Dementia
Effect of an Advance Care Planning Intervention
The intervention being studied is an advance care planning intervention. The trial has two arms: usual care and information arm.
- Trial name
- NCT04852055
- Testing
- Advance Care Planning Video
- Where
- United States
- Volunteers
- 2,364 people
- Sponsor
- Brown University
Cancer
Health Equity: Advance Care Planning for Spanish Speaking Teens With Cancer-1st Resubmission
Pediatric ACP (Advance Care Planning) (pACP) (1) Supports communication with children/adolescents at any stage of a serious illness in understanding their illness, complications, fears, and hopes, as well as treatment preferences…
- Trial name
- FACE-TC-Sp (NCT04095000)
- Testing
- FACE-TC SP, Treatment as Usual
- Where
- United States
- Volunteers
- 16 people
- Sponsor
- Maureen Lyon