Friedreich AtaxiaNCT04649866
Coronary Artery Disease in Patients With Friedreich's Ataxia
A study testing plethysmography in people with Friedreich Ataxia, run by University of Pittsburgh at 1 site in United States.
Trial summary
Friedreich's ataxia is a debilitating, inherited disease cause by mutations in a protein called frataxin (FXN). FXN is one of several proteins that controls the production of iron-sulfur clusters, molecules that are essential for energy production in our cells as well as repair of our genetic code embedded in DNA… Read more about this study
- Who is it for?
- Ages 18 to 79 years
- Conditions the study is for
- Friedreich Ataxia
- What is being tested?
- plethysmography
- Type of treatment
- Injection or infusion
- Could I receive a placebo?
- No, everyone receives an active treatment
- How many people
- 7 participants
- Where
- 1 siteUnited States
- Study dates
- 15 Feb 2021to 1 Sep 2023
- Phase
- Interventional
- Are there results?
- None posted in the registry
Key requirements
Who can take part, as listed by the sponsor. Only the study team can confirm whether you are eligible, so take this list to your doctor.
- Ages 18 to 79 years
- All sexes
- No healthy volunteers
- Adult, Older adult
Who may be able to join
- Patients older than 18
- Has FRDA
- Has recent clinical echocardiography data confirming normal cardiac function
Who cannot join
- Patients younger than 18
- Has abnormal cardiac function
Trial locations and contacts
1 site in 1 country.
United States1 site
Montefiore Hospital Clinical and Translational Research Center
Pittsburgh, Pennsylvania, 15213
About this study
Official title: Vasculopathy and Remodeling of Coronary Arteries in FRDA Patients
Friedreich's ataxia is a debilitating, inherited disease cause by mutations in a protein called frataxin (FXN). FXN is one of several proteins that controls the production of iron-sulfur clusters, molecules that are essential for energy production in our cells as well as repair of our genetic code embedded in DNA molecules. Friedreich's ataxia (FRDA) and deficiency of FXN results in a nerve disease affecting coordination and a condition called hypertrophic cardiomyopathy (HCM), marked by an abnormal thickening of the heart. Patients with HCM can then develop pulmonary hypertension (PH), a deadly condition of the blood vessels of the lung. While most of the research in FRDA has focused on nerves and heart muscle, alterations in blood vessels of the heart and lung may worsen disease in FRDA. But, the role of FXN in these blood vessels has never been defined.
Investigators pilot data suggest that Frataxin (FXN ) deficiency can control senescence and downstream function in various types of Endothelial cells (ECs), investigators hypothesize that Friedreich's Ataxia (FRDA) patients may demonstrate endothelial cells EC abnormalities throughout the vasculature potentially before overt cardiomyopathy develops.
Read the detailed description
Procedure in details:
Investigators have extensive experience in the performance of forearm blood flow studies using strain gauge plethysmography in patient volunteers. Endothelial dysfunction will be tested according to methodologies employed in our blood flow laboratories for more than a decade. Strain-gauge plethysmography is used to measure forearm blood flow during infusions of acetylcholine [ACh], and sodium nitroprusside [SNP] . Intra-arterial infusions of acetylcholine to test endothelium-dependent blood flow. Acetylcholine acts on muscarinic receptors to increase intracellular calcium levels and activate endothelial nitic oxide (NO) synthase. SNP is an exogenous source of NO, to assess endothelium-independent vasodilatation.
Cumulative dose response curves will be constructed over 5-minute incremental infusions. Study doctor will proceed in the following order:
- SNP 0.8 1.6 and 3.2 mcg/min
- ACh 7.5 15 and 30 mcg/min
- Normal saline
Forearm blood flow (FBF) measurements in both arms will be made using venous occlusion strain-gauge plethysmography prior to the initiation of any intra-arterial infusions. Blood pressure and heart rate will be measured during the procedure through the ECG. All FBF measurements will be expressed as mL/min per 100-1 mL forearm volume according to prior studies and the Whitney method.1, 2 Resting baseline FBF will be measured at least 30 minutes after venous and arterial catheter placement to ensure that blood flows in the cannulated arms are stabilized. Study team will measure FBF during the last 2 minutes of each infusion period. Infusions of individual vasoactive medications will occur over a 15-minute interval. There will be a 25-minute washout between vasoactive medications. The ACh 30 mcg/min will run for a total of 10 minutes.
Test visit:
The study will consist of one visit. Research nurse will do the lab work once subject arrive (results will take about an hour), and if eligible study team will proceed with the research procedure.
All subjects scheduled for the visit will report to the CTRC on the morning of testing at 8:00 AM. The subject will be placed in a quiet room with a where he will meet with the study doctor and CRC. The study doctor will discuss with the subject the nature of the research study, the risks of study participation, and participants' rights as a research subject. Then will ask subject to sign consent form. After signing the consent form, the study doctor will perform screening procedure which include the following:
- Asking questions concerning all medications prescriptions and non-prescription medications (vitamins, herbal supplements, aspirin, etc.) that are presently taking. Study team will be recording all this information in the subject's research record.
- Obtain a medical history and physical examination conducted by the study doctor.
- Will record height, weight, and vital signs of the subject.
- Research nurse will draw blood for laboratory testing. These tests will be a complete blood count (a test to make sure that subject is not anemic, or have too few red blood cells), electrolytes (tests to check the chemistry levels), glucose, and clotting tests. These tests will be performed to evaluate the health of subjects' body during study participation. Approximately 1 1/2 tablespoons (22 mL) of blood will be collected for this sample.
All screening results will be reviewed by the study doctor prior to the procedure. Subject will be provided with any abnormal screening results so that he/she can follow up with their primary care doctor for further evaluation.
All results of these screening reports will be read by our study doctors before initiating the study, it is possible that after taking these tests subject may not be able to take part in this study. The total duration of this visit is approximately 3-4 hours.
Only 1 subject will be scheduled in the CTRC on any given testing day to meet appropriate clinical staffing requirements for the study.
The CTRC nurse will place a peripheral 20-22-gauge venous catheter in the subject's antecubital vein of the non-dominant forearm for the purpose of collecting initial blood draw that will be used for research. After confirmation and documentation of dual arterial perfusion of the hand by an Allen's test, Dr. Risbano (co-investigator), is a critical care physician and qualified in this critical care procedure with 19 years' experience of doing arterial lines, will place an 20-22 brachial artery catheter in the non-dominant arm for infusion and blood pressure monitoring. Any non-PI physician will be personally supervised by the PI for three cannulations before allowing independent cannulation. Prior to the brachial artery catheter placement 1% lidocaine will be administered by injection for local anesthesia. Brachial artery catheterization is required for the strain gauge approach to locally administer the drugs to the forearm arterial circulation, while limiting systemic effect. The intra-arterial catheter will be connected by a 3-way stopcock to a pressure transducer for blood pressure measurements and to an infusion pump. Blood Flow Measurements: Heart rate, cardiac rhythm, respirations, blood pressure, and oxygen saturation will be continuously monitored. Forearm blood flow measurements will be performed by means of strain gauge venous-occlusion plethysmography, using methodology employed by the PI at the Vascular Medicine Branch of NHLBI in many other studies. plethysmography cuff pressure is intermittent. A mercury-filled Silastic strain gauge is placed around the widest portion of the forearm, and connected to a plethysmograph calibrated to measure the percent change in volume. The plethysmograph is connected to a strip chart recorder for forearm blood flow measurements following inflation of a wrist cuff to suprasystolic pressure to exclude the hand circulation. The cuff is inflated for a duration of 8-10 seconds over a 15 second interval. A blood pressure cuff on the upper arm is inflated to 40 mmHg for 7 seconds with a rapid cuff inflator in order to occlude venous outflow, but not arterial inflow, into the forearm. This causes non invisible distention of the forearm at a rate proportionate to arterial inflow. Blood pressure will be recorded directly from the intraarterial catheter immediately after each series of flow measurements. The use of dual arm plethysmography will allow a direct comparison of the non-instrumented arm (as a control) with the instrumented arm (research procedure), and serial measurements collected every 15 seconds during the research process.
Upon completion of the research testing procedure, the study doctor will remove the venous and arterial catheters. A doctor will personally perform the decannulation procedure. The subject will be asked to remain in the supine position with the arm at or above heart level and to keep the arm still during the procedure. The doctor will ensure that all infusions are stopped and the stopcocks turned off to the patient. Any suture or tape used to secure the line will be removed using standard precautions. The cannula will then be removed and firm pressure held over the artery site with direct pressure of the thumb over sterile gauze for approximately 10 minutes at which time the doctor will check for any bleeding from the puncture site. If there is any bleeding, pressure will be held for an additional 10 minutes. Once there is no bleeding, a pressure dressing with Coban will be placed over the site. The subject will be instructed to remain in the supine position for an additional 10 minutes, and to remain in the study room for a 30-minute observation period. The arm will again be examined by the study physician prior to discharge of the subject at which time the doctor will instruct them regarding care of their arm and provide them with an instruction sheet.
Medical Record Information: Study team will request subject's authorization to access medical record information from their past, current and future medical record information related to their health condition to be recorded into the Research study. This information will be collected from Heart and Vascular Institute (HVI) records, hospital records and, if applicable, private physician records. Since heart failure symptoms/progression may change over time, and these changes may be important to this study result, future medical records will be collected indefinitely. The medical record information contained within the study database will be used for research related purposes for an indefinite time. Subjects medical record information may be reviewed to see if they were eligible for any ongoing or future research studies; if they were eligible, then study team may contact subjects.
Review of family history: For individuals who have a family history of FRDA, heart or lung disease, Study team may ask some basic information about other members of the family. Study team will not record in the Research study any identifiable information about individuals who have not signed consent to participate in this research.
- Conditions
- Friedreich Ataxia
- Being tested
- plethysmography
- Keywords
- Friedreich's ataxia, frataxin, cardiomyopathy
- Medical subject headings
- Friedreich Ataxia, Cardiomyopathies
What participants receive
What participants receive. In a randomised study each person is assigned to one group by chance.
plethysmographyDiagnostic test
Forearm blood flow (FBF) measurements in both arms will be made using venous occlusion strain-gauge plethysmography prior to the initiation of any intra-arterial infusions. All FBF measurements will be expressed as mL/min per 100-1 mL forearm volume according to prior studies and the Whitney method.1, 2 Resting baseline FBF will be measured at least 30 minutes after venous and arterial catheter placement to ensure that blood flows in the cannulated arms are stabilized. We will measure FBF during the last 2 minutes of each infusion period. Infusions of individual vasoactive medications will occur over a 15-minute interval. There will be a 25-minute washout between vasoactive medications. Cumulative dose response curves will be constructed over 5-minute incremental infusions. We will proceed in the following order:
- SNP 0.8, 1.6 and 3.2 mcg/min
- ACh 7.5, 15 and 30 mcg/min
- Normal saline
| Study group | Role | What they receive |
|---|---|---|
| Test group | Experimental | Endothelial dysfunction will be tested using Strain-gauge plethysmography to measure forearm blood flow during infusions of acetylcholine [ACh] and sodium nitroprusside [SNP] Receives: Diagnostic Test: plethysmography |
| Control group | Active comparator | Endothelial dysfunction will be tested using Strain-gauge plethysmography to measure forearm blood flow during infusions of acetylcholine [ACh] and sodium nitroprusside [SNP] Receives: Diagnostic Test: plethysmography |
What is being measured
The primary outcome is the main question the study is designed to answer.
vasomotor tone
We will quantify vasomotor tone in regard to level of vasoconstriction and vasodilation at rest and in response to pharmacologic stimulation
Measured: 2-4 hours
Timeline
From the start of the study to its completion; the mark is today. Estimated dates are the sponsor’s plan.
- First posted2 Dec 2020
- Study start15 Feb 2021
- Primary completion1 Aug 2023
- Study completion1 Sep 2023
Resources
- Official record on ClinicalTrials.govThe registry entry this page is built from, with its full change history.
- Other trials for Friedreich AtaxiaStudies of the same condition, open and under way.
- More trials run by University of PittsburghThe sponsor's other registered studies.
- What the trial phases meanHow a treatment moves from first tests in people to approval.
More details
For doctors and researchers: how the study is designed, who runs it, and its registry IDs.
Study design
- Study type
- Interventional
- Phase
- Phase N/A
- Primary purpose
- Diagnosis
- Allocation
- Non-randomised
- Intervention model
- Parallel groups
- Masking
- None (open label)
- Enrolment
- 7 participants (actual)
Sponsor and investigators
- Lead sponsor
- University of Pittsburgh
- Sponsor type
- University, hospital or other
- Collaborators
- Friedreich's Ataxia Research Alliance
- Responsible party
- Principal investigator, Stephen Y. Chan, University of Pittsburgh
- Investigators
- Stephen Chan, MD, PhD, Principal investigator, University of Pittsburgh
IDs, dates and publications
- ClinicalTrials.gov ID
- NCT04649866
- Sponsor's protocol ID
- STUDY20070248
- Status last verified
- Sep 2023
- First submitted
- 24 Nov 2020
- Last updated
- 8 Sep 2023
- Results posted
- No
- Data monitoring committee
- No
- FDA-regulated drug
- No
- FDA-regulated device
- No
- Individual data sharing
- Yes: Data may be shared with other individuals for future research and if shared will be shared without identifiers. Participant's medical record information contained within the Research study may be provided to secondary research investigators (i.e., research investigators who are not affiliated with the Comprehensive Pulmonary Hypertension Program at University of Pittsburgh). However, prior to its provision to any secondary investigators, the information shall be de-identified. The Comprehensive Pulmonary Hypertension Program and Comprehensive lung center shall require secondary investigators to obtain regulatory approval prior its provision of de-identified information to the secondary investigators.
Study at a glance
From the registry record, last updated by the sponsor on 8 Sep 2023. Recruitment status is as the sponsor reported it: confirm with the study team.
- Official title
- Vasculopathy and Remodeling of Coronary Arteries in FRDA Patients
- ClinicalTrials.gov ID
- NCT04649866
- Acronym / sponsor ID
- STUDY20070248
- Conditions
- Friedreich Ataxia
- Keywords
- Friedreich's ataxia, frataxin, cardiomyopathy
- Study type
- Interventional
- Recruitment status
- Completed
- Enrolment
- 7 participants (actual)
- Lead sponsor
- University of PittsburghUniversity, hospital or other
- Collaborators
- Friedreich's Ataxia Research Alliance
- Study start
- 15 Feb 2021 (actual)
- Primary completion
- 1 Aug 2023 (actual)
- Study completion
- 1 Sep 2023 (actual)
- First posted
- 2 Dec 2020 (actual)
- Results
- Not posted in the source record
Clinical summary
The research question as the sponsor registered it. This describes what the study plans to test, not what it found.
Friedreich's ataxia is a debilitating, inherited disease cause by mutations in a protein called frataxin (FXN). FXN is one of several proteins that controls the production of iron-sulfur clusters, molecules that are essential for energy production in our cells as well as repair of our genetic code embedded in DNA molecules. Friedreich's ataxia (FRDA) and deficiency of FXN results in a nerve disease affecting coordination and a condition called hypertrophic cardiomyopathy (HCM), marked by an abnormal thickening of the heart. Patients with HCM can then develop pulmonary hypertension (PH), a deadly condition of the blood vessels of the lung. While most of the research in FRDA has focused on nerves and heart muscle, alterations in blood vessels of the heart and lung may worsen disease in FRDA. But, the role of FXN in these blood vessels has never been defined.
Investigators pilot data suggest that Frataxin (FXN ) deficiency can control senescence and downstream function in various types of Endothelial cells (ECs), investigators hypothesize that Friedreich's Ataxia (FRDA) patients may demonstrate endothelial cells EC abnormalities throughout the vasculature potentially before overt cardiomyopathy develops.
Detailed description
Procedure in details:
Investigators have extensive experience in the performance of forearm blood flow studies using strain gauge plethysmography in patient volunteers. Endothelial dysfunction will be tested according to methodologies employed in our blood flow laboratories for more than a decade. Strain-gauge plethysmography is used to measure forearm blood flow during infusions of acetylcholine [ACh], and sodium nitroprusside [SNP] . Intra-arterial infusions of acetylcholine to test endothelium-dependent blood flow. Acetylcholine acts on muscarinic receptors to increase intracellular calcium levels and activate endothelial nitic oxide (NO) synthase. SNP is an exogenous source of NO, to assess endothelium-independent vasodilatation.
Cumulative dose response curves will be constructed over 5-minute incremental infusions. Study doctor will proceed in the following order:
- SNP 0.8 1.6 and 3.2 mcg/min
- ACh 7.5 15 and 30 mcg/min
- Normal saline
Forearm blood flow (FBF) measurements in both arms will be made using venous occlusion strain-gauge plethysmography prior to the initiation of any intra-arterial infusions. Blood pressure and heart rate will be measured during the procedure through the ECG. All FBF measurements will be expressed as mL/min per 100-1 mL forearm volume according to prior studies and the Whitney method.1, 2 Resting baseline FBF will be measured at least 30 minutes after venous and arterial catheter placement to ensure that blood flows in the cannulated arms are stabilized. Study team will measure FBF during the last 2 minutes of each infusion period. Infusions of individual vasoactive medications will occur over a 15-minute interval. There will be a 25-minute washout between vasoactive medications. The ACh 30 mcg/min will run for a total of 10 minutes.
Test visit:
The study will consist of one visit. Research nurse will do the lab work once subject arrive (results will take about an hour), and if eligible study team will proceed with the research procedure.
All subjects scheduled for the visit will report to the CTRC on the morning of testing at 8:00 AM. The subject will be placed in a quiet room with a where he will meet with the study doctor and CRC. The study doctor will discuss with the subject the nature of the research study, the risks of study participation, and participants' rights as a research subject. Then will ask subject to sign consent form. After signing the consent form, the study doctor will perform screening procedure which include the following:
- Asking questions concerning all medications prescriptions and non-prescription medications (vitamins, herbal supplements, aspirin, etc.) that are presently taking. Study team will be recording all this information in the subject's research record.
- Obtain a medical history and physical examination conducted by the study doctor.
- Will record height, weight, and vital signs of the subject.
- Research nurse will draw blood for laboratory testing. These tests will be a complete blood count (a test to make sure that subject is not anemic, or have too few red blood cells), electrolytes (tests to check the chemistry levels), glucose, and clotting tests. These tests will be performed to evaluate the health of subjects' body during study participation. Approximately 1 1/2 tablespoons (22 mL) of blood will be collected for this sample.
All screening results will be reviewed by the study doctor prior to the procedure. Subject will be provided with any abnormal screening results so that he/she can follow up with their primary care doctor for further evaluation.
All results of these screening reports will be read by our study doctors before initiating the study, it is possible that after taking these tests subject may not be able to take part in this study. The total duration of this visit is approximately 3-4 hours.
Only 1 subject will be scheduled in the CTRC on any given testing day to meet appropriate clinical staffing requirements for the study.
The CTRC nurse will place a peripheral 20-22-gauge venous catheter in the subject's antecubital vein of the non-dominant forearm for the purpose of collecting initial blood draw that will be used for research. After confirmation and documentation of dual arterial perfusion of the hand by an Allen's test, Dr. Risbano (co-investigator), is a critical care physician and qualified in this critical care procedure with 19 years' experience of doing arterial lines, will place an 20-22 brachial artery catheter in the non-dominant arm for infusion and blood pressure monitoring. Any non-PI physician will be personally supervised by the PI for three cannulations before allowing independent cannulation. Prior to the brachial artery catheter placement 1% lidocaine will be administered by injection for local anesthesia. Brachial artery catheterization is required for the strain gauge approach to locally administer the drugs to the forearm arterial circulation, while limiting systemic effect. The intra-arterial catheter will be connected by a 3-way stopcock to a pressure transducer for blood pressure measurements and to an infusion pump. Blood Flow Measurements: Heart rate, cardiac rhythm, respirations, blood pressure, and oxygen saturation will be continuously monitored. Forearm blood flow measurements will be performed by means of strain gauge venous-occlusion plethysmography, using methodology employed by the PI at the Vascular Medicine Branch of NHLBI in many other studies. plethysmography cuff pressure is intermittent. A mercury-filled Silastic strain gauge is placed around the widest portion of the forearm, and connected to a plethysmograph calibrated to measure the percent change in volume. The plethysmograph is connected to a strip chart recorder for forearm blood flow measurements following inflation of a wrist cuff to suprasystolic pressure to exclude the hand circulation. The cuff is inflated for a duration of 8-10 seconds over a 15 second interval. A blood pressure cuff on the upper arm is inflated to 40 mmHg for 7 seconds with a rapid cuff inflator in order to occlude venous outflow, but not arterial inflow, into the forearm. This causes non invisible distention of the forearm at a rate proportionate to arterial inflow. Blood pressure will be recorded directly from the intraarterial catheter immediately after each series of flow measurements. The use of dual arm plethysmography will allow a direct comparison of the non-instrumented arm (as a control) with the instrumented arm (research procedure), and serial measurements collected every 15 seconds during the research process.
Upon completion of the research testing procedure, the study doctor will remove the venous and arterial catheters. A doctor will personally perform the decannulation procedure. The subject will be asked to remain in the supine position with the arm at or above heart level and to keep the arm still during the procedure. The doctor will ensure that all infusions are stopped and the stopcocks turned off to the patient. Any suture or tape used to secure the line will be removed using standard precautions. The cannula will then be removed and firm pressure held over the artery site with direct pressure of the thumb over sterile gauze for approximately 10 minutes at which time the doctor will check for any bleeding from the puncture site. If there is any bleeding, pressure will be held for an additional 10 minutes. Once there is no bleeding, a pressure dressing with Coban will be placed over the site. The subject will be instructed to remain in the supine position for an additional 10 minutes, and to remain in the study room for a 30-minute observation period. The arm will again be examined by the study physician prior to discharge of the subject at which time the doctor will instruct them regarding care of their arm and provide them with an instruction sheet.
Medical Record Information: Study team will request subject's authorization to access medical record information from their past, current and future medical record information related to their health condition to be recorded into the Research study. This information will be collected from Heart and Vascular Institute (HVI) records, hospital records and, if applicable, private physician records. Since heart failure symptoms/progression may change over time, and these changes may be important to this study result, future medical records will be collected indefinitely. The medical record information contained within the study database will be used for research related purposes for an indefinite time. Subjects medical record information may be reviewed to see if they were eligible for any ongoing or future research studies; if they were eligible, then study team may contact subjects.
Review of family history: For individuals who have a family history of FRDA, heart or lung disease, Study team may ask some basic information about other members of the family. Study team will not record in the Research study any identifiable information about individuals who have not signed consent to participate in this research.
Study design
- Primary purpose
- Diagnosis
- Allocation
- Non-randomised
- Intervention model
- Parallel groups
- Masking
- None (open label)
- Number of arms
- 2
| Arm | Type | Receives |
|---|---|---|
| Test group | Experimental | Diagnostic Test: plethysmographyEndothelial dysfunction will be tested using Strain-gauge plethysmography to measure forearm blood flow during infusions of acetylcholine [ACh] and sodium nitroprusside [SNP] |
| Control group | Active comparator | Diagnostic Test: plethysmographyEndothelial dysfunction will be tested using Strain-gauge plethysmography to measure forearm blood flow during infusions of acetylcholine [ACh] and sodium nitroprusside [SNP] |
Who may qualify
- Ages
- 18 to 79 years
- Sex
- All
- Healthy volunteers
- Not accepted
- Age groups
- Adult, Older adult
Key inclusion criteria (3 listed)
- Patients older than 18
- Has FRDA
- Has recent clinical echocardiography data confirming normal cardiac function
Key exclusion criteria (2 listed)
- Patients younger than 18
- Has abnormal cardiac function
Eligibility is decided by the study team after screening; this overview does not establish that a patient qualifies. Full inclusion and exclusion criteria.
Interventions
| Intervention | Type | Arms |
|---|---|---|
| plethysmographyForearm blood flow (FBF) measurements in both arms will be made using venous occlusion strain-gauge plethysmography prior to the initiation of any intra-arterial infusions. All FBF measurements will be expressed as mL/min per 100-1 mL forearm volume according to prior studies and the Whitney method.1, 2 Resting baseline FBF will be measured at least 30 minutes after venous and arterial catheter placement to ensure that blood flows in the cannulated arms are stabilized. We will measure FBF during the last 2 minutes of each infusion period. Infusions of individual vasoactive medications will occur over a 15-minute interval. There will be a 25-minute washout between vasoactive medications. Cumulative dose response curves will be constructed over 5-minute incremental infusions. We will proceed in the following order: * SNP 0.8, 1.6 and 3.2 mcg/min * ACh 7.5, 15 and 30 mcg/min * Normal saline | Diagnostic test | Control group, Test group |
Primary outcome
vasomotor tone
Time frame: 2-4 hours
We will quantify vasomotor tone in regard to level of vasoconstriction and vasodilation at rest and in response to pharmacologic stimulation
Results and safety
The study is completed, but results are not available in the source record. That does not mean the treatment did or did not work.
Research links
- Official record on ClinicalTrials.govLast updated by the sponsor 8 Sep 2023.
- Individual participant dataSharing planned: Yes. Data may be shared with other individuals for future research and if shared will be shared without identifiers. Participant's medical record information contained within the Research study may be provided to secondary research investigators (i.e., research investigators who are not affiliated with the Comprehensive Pulmonary Hypertension Program at University of Pittsburgh). However, prior to its provision to any secondary investigators, the information shall be de-identified. The Comprehensive Pulmonary Hypertension Program and Comprehensive lung center shall require secondary investigators to obtain regulatory approval prior its provision of de-identified information to the secondary investigators.
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Referral and contact
AzTrials does not enrol participants or take referrals. Contact the study team or a site listed below; they decide who can take part. This study is not recruiting at the moment.
Stephen Chan, MD, PhD principal investigator
University of Pittsburgh
1 site in 1 country: see every site and its status.
Questions about this trial
What is this clinical trial studying?
A study testing plethysmography in people with Friedreich Ataxia, run by University of Pittsburgh at 1 site in United States.
The full registered description is in the About this study section and the official record.
Who may be eligible to take part?
The sponsor lists 3 inclusion and 2 exclusion criteria. Eligibility is decided by the study team after screening, so read the full criteria and contact a listed site.
Is this clinical trial currently recruiting?
The record says: finished, as of the sponsor's last update on 8 Sep 2023. Status can change between updates, so confirm with the study contact before making plans.
Where is the study taking place?
The record lists 1 site in United States. Whether a site is taking part right now should be confirmed with that site. See every site.
What are the possible benefits and risks?
They depend on the study and the treatment, and no study can promise a benefit. The study team explains the known risks during informed consent, before anyone joins; the record itself does not list them.
Are results available for this study?
The study is completed, but results are not available in the source record. That does not mean the treatment did or did not work.
How can a doctor refer a patient or contact the research team?
The record lists no contact. The official record names the sponsor, who can be asked directly. AzTrials does not enrol participants or take referrals.
What does the primary outcome measure?
vasomotor tone (time frame: 2-4 hours). It is what the study was designed to measure, not a finding.
Where can I read the original study information?
Does a listing mean the treatment is approved or proven to work?
No. A listing means the study is registered. It does not show that the treatment is safe, works, or is approved by a regulator.
How often is this information updated?
AzTrials copies changed records from ClinicalTrials.gov every night and reloads the whole registry every week. The sponsor last updated this record on 8 Sep 2023.