Clinical trials: Information Disclosure
Rheumatoid Arthritis
Pain and Stress Management for People With Rheumatoid Arthritis
Self-management of rheumatoid arthritis (RA) symptoms using written emotional disclosure (ED), coping skills training (CST), or a combination of both may benefit people with RA.
- Trial name
- NCT00088764
- Testing
- Coping skills training, Written emotional disclosure, Arthritis education
- Where
- 2 sites in United States
- Volunteers
- 280 people
- Sponsor
- Wayne State University
Mental Illness
Honest, Open, Proud for Soldiers with Mental Illness
The purpose of the study is to evaluate the feasibility and efficacy of the group-based intervention "Honest, Open, Proud" among soldiers with mental illness.
- Trial name
- NCT03218748
- Testing
- Honest, Open, Proud (HOP)
- Where
- 3 sites in United States, Germany
- Volunteers
- 99 people
- Sponsor
- University of Ulm
Alzheimer Disease, Dementia
BarcelonaBeta Dementia Prevention Research Clinic: a Study on Risk Factors Disclosure
Alzheimer's disease (AD) is the leading cause of dementia and its prevalence is estimated to exceed 100 million affects by 2050, becoming the main public health problem worldwide.
- Conditions
- Alzheimer Disease, Dementia, Mild Cognitive Impairment, Subjective Cognitive Decline
- Trial name
- NCT03847038
- Testing
- Preventive strategies advice and dementia risk estimate disclosure
- Where
- Spain
- Volunteers
- 306 people, healthy volunteers welcome
- Sponsor
- Barcelonabeta Brain Research Center, Pasqual Maragall Foundation
Paediatric HIV Diagnosis Disclosure
Pediatric HIV Disclosure Intervention
With increased availability of antiretroviral therapy (ART) and improved care, increasing numbers of perinatally infected children are surviving into adolescence.
- Trial name
- NCT01773642
- Testing
- Cognitive behavioral intervention to support pediatric HIV disclosure
- Where
- 6 sites in Uganda
- Volunteers
- 600 people
- Sponsor
- University of Connecticut
Cystic Fibrosis
Disclosing a Cystic Fibrosis Diagnosis to a Dating Partner
This study will examine the experience of disclosing a cystic fibrosis (CF) diagnosis to a dating partner. CF has implications for potential life partners (issues of fertility, decreased life span and an increasing need for…
- Trial name
- NCT00485082
- Where
- United States
- Volunteers
- 50 people
- Sponsor
- National Human Genome Research Institute (NHGRI)
Colorectal Cancer
Expressive Disclosure and Colorectal Cancer
This is a Two-part Pilot Study: Part 1 is descriptive and Part 2 is a pilot randomized trial. Part 1 will be a formative study in which individual interviews are conducted with 20 patients previously diagnosed with colorectal…
- Trial name
- NCT00853203
- Testing
- Interviews, Questionnaires, Electronically Activated Recorder (EAR)
- Where
- 2 sites in United States
- Volunteers
- 174 people
- Sponsor
- M.D. Anderson Cancer Center
Fertility Issues, Disclosure
Feasibility Trial of the TELL Tool Intervention
A radical paradigm shift is taking place where technology, notably the explosion in easy accessible direct-to-consumer genetic testing (e.g., 23andMe) and a high consumer interest in genealogy (e.g., Ancestry.com), has hijacked…
- Conditions
- Fertility Issues, Disclosure, Parenting
- Trial name
- NCT04841967
- Testing
- TELL Tool Intervention, eBook Attention Control
- Where
- United States
- Volunteers
- 75 people, healthy volunteers welcome
- Sponsor
- University of Illinois at Chicago
Mental Illness, Behavior Disorders
Up To Me: Erasing the Stigma of Mental Illness on College Campuses
This is a three-lesson, disclosure-based stigma reduction program meant to reduce barriers to community living and participation for college students with psychiatric disabilities.
- Conditions
- Mental Illness, Behavior Disorders, Severe Mental Illness, Psychiatric Diagnosis
- Trial name
- NCT05784818
- Testing
- Up To Me Intervention + No Booster, Up To Me Intervention + Booster
- Where
- United States
- Volunteers
- 201 people, healthy volunteers welcome
- Sponsor
- University of South Florida
Sickle Cell Trait
Increasing Documentation and Disclosure of Sickle Cell Trait Status: An Implementation Science Approach
The hemoglobinopathy newborn screen (NBS) performed on all neonates in the U.S. allows for early life-saving medical care for infants with sickle cell disease (SCD), an autosomal recessive genetic disorder.
- Trial name
- NCT05387564
- Testing
- SCT Documentation and Disclosure Toolkit (SCT-DD)
- Where
- United States
- Volunteers
- 114 people
- Sponsor
- Nemours Children's Clinic
Cardiovascular Diseases
Personalised HeartCare: Poligenic Risk Scores Disclosure for Cardiovascular Prevention
The goal of this clinical trial is to evaluate whether the disclosure of Polygenic Risk Scores (PRS) combined with personalized coaching on risk factors can lead to significant improvements in lifestyle behaviors among staff…
- Trial name
- PHC (NCT06888466)
- Testing
- The result of the Polygenic Risk Score will be communicated to the patient with the aim of encouraging a change in behavior
- Where
- Italy
- Volunteers
- 650 people, healthy volunteers welcome
- Sponsor
- Catholic University of the Sacred Heart
HIV
A Parenting and Self-Care Intervention for HIV Infected Mothers
The IMAGE intervention was developed to improve parenting and self-care skills in mothers infected with HIV. It is expected that an improvement in these areas will in turn improve the mother's physical and mental health as well…
- Trial name
- IMAGE (NCT01586988)
- Testing
- IMAGE Intervention
- Where
- United States
- Volunteers
- 124 people
- Sponsor
- University of California, Los Angeles
Lung Neoplasms, Stomach Neoplasms
Default Option Nudging Intervention to Improve the Adherence Rates of Cancer Screening
The goal of this clinical trial is to learn if a behavioral "nudge" strategy, specifically a default option, can improve screening participation in populations at high risk for lung and stomach cancer.
- Conditions
- Lung Neoplasms, Stomach Neoplasms, Early Detection of Cancer, Patient Compliance
- Trial name
- NCT07682220
- Testing
- Default Options
- Where
- China
- Volunteers
- 1,200 people, healthy volunteers welcome
- Sponsor
- Harbin Medical University
HIV
SANKOFA Pediatric HIV Disclosure Intervention
A culturally-relevant, theoretically and empirically sound, patient-centered, standardized disclosure intervention that can be integrated into routine clinical pediatric HIV care has potential to prevent transmission and improve…
- Trial name
- NCT01701635
- Testing
- Disclosure intervention, usual care
- Where
- 2 sites in Ghana
- Volunteers
- 446 people
- Sponsor
- Yale University
HIV Risk Reduction, Attention Control Case Management
Disclosure to Family
The decision to disclose one's serostatus to family members creates considerable emotional strain for people living with HIV (PLWH), regardless of gender and sexual orientation.
- Trial name
- D2F (NCT02111720)
- Testing
- Maybe, Maybe Not, Comprehensive Risk Counseling and Services
- Where
- United States
- Volunteers
- 351 people
- Sponsor
- University of South Florida
Cancer of the GI System-stages II III and IV
Partner-Assisted Emotional Disclosure for GI Cancer
The long-range goal of this research is to develop better ways of helping GI cancer patients and their caregivers cope more effectively with the demands of the disease.
- Trial name
- NCT00734513
- Testing
- Partner-assisted emotional disclosure, Cancer Education
- Where
- United States
- Volunteers
- 300 people
- Sponsor
- Duke University
Head And Neck Cancer
Spousal Support in Head and Neck Cancer
The goal of this research study is to look at social and relationship factors that may affect the quality of life of patients with head and neck cancer and their spouses.
- Trial name
- NCT00824252
- Testing
- Questionnaires & Study Visit
- Where
- United States
- Volunteers
- 361 people, healthy volunteers welcome
- Sponsor
- M.D. Anderson Cancer Center
Autism Spectrum Disorder
Diagnosis Disclosure Support for Caregivers of Children With Autism
The purpose of this randomized controlled pilot study is to develop and evaluate an online diagnosis disclosure support intervention for caregivers of 7- to 12-year-old children with autism spectrum disorder (ASD) in South Korea.
- Trial name
- NCT07328438
- Testing
- SHARE : Supporting Honest Autism Recognition and Education, One-session seminar
- Volunteers
- 40 people
- Sponsor
- Korea University
Other Diseases or Conditions | Patient
Efficacy of Gastric Biopsy for Culture and Antibiotic Sensitivity Assessment
Gastric biopsies will be taken to compare different methods of H.pylori disclosure.Standard methods will be compared to culture.
- Trial name
- NCT01414829
- Testing
- Gastroscopy
- Sponsor
- The Baruch Padeh Medical Center, Poriya
Alzheimer Disease, Genetic Predisposition to Disease
Telephone Versus Videoconference Communication for Remote Genetic Disclosure in the APOE4 Trial
The purpose of this study is to compare two methods for remote genetic counseling (telephone and two-way videoconferencing) for patients who are receiving disclosure of their APOE (apolipoprotein E) genotype.
- Trial name
- CONNECT4APOE (NCT02978729)
- Testing
- Two-way videoconference remote genetic counseling, Telephone remote genetic counseling
- Volunteers
- 613 people, healthy volunteers welcome
- Sponsor
- University of Pennsylvania
Bone Marrow Transplant, Information Disclosure
Effects of Digital Stories Intervention on Psychosocial Well-being
Patients and caregivers undergoing hematopoietic stem cell transplantation often continue to experience anxiety, depression, isolation, and other psychosocial distress.
- Conditions
- Bone Marrow Transplant, Information Disclosure, Hematopoietic Stem Cell Transplantation, Psychosocial Health
- Trial name
- NCT03654599
- Testing
- Baseline Surveys, Digital Stories Intervention, Information Control Intervention
- Where
- United States
- Volunteers
- 202 people
- Sponsor
- Arizona State University