Clinical trials: Family Research
Consent Process
Examining the Efficacy of a Digital Media Intervention to Increase Recruitment Rates
WHEAT-Boost is a Study Within A Trial (SWAT) that aims to improve how families are recruited into neonatal research studies by testing a new way of sharing information.
- Trial name
- WHEAT-Boost (NCT07284329)
- Testing
- Intervention (Video) Arm
- Where
- 15 sites in Canada
- Volunteers
- 787 people
- Sponsor
- IWK Health Centre
Cyclic Vomiting Syndrome
The Use of L-Carnitine And CoQ10 Supplements In the Treatment of Cyclic Vomiting Syndrome (CVS)
This is a study with the principle goal being to learn about the use of L-Carnitine and CoQ10, two vitamin supplements that are currently being used to treat Cyclic Vomiting Syndrome, largely initiated by parents.
- Trial name
- NCT00728104
- Where
- United States
- Sponsor
- Medical College of Wisconsin
Familial Hypercholesterolemia
PMMHRI - Familial Hypercholesterolemia Registry
The registry is maintained at the Regional Centre for Rare Diseases, established in 2016, within Polish Mother's Memorial Hospital Research Institute.
- Trial name
- FH-Registry (NCT06571630)
- Where
- Poland
- Volunteers
- 300 people
- Sponsor
- Polish Mother Memorial Hospital Research Institute
Autism Spectrum Disorder, Patient Engagement
Testing Design Thinking Methodology to Engage Hispanic and Latino Families of Autistic Children in Research.
The goal of this study is to compare the level of engagement in the Hispanic and Latino parents of autistic children and culturally adapt the protocol of Ayres Sensory Integration to improve participation and health outcomes.
- Trial name
- NCT06111092
- Testing
- Design Thinking, Focus Groups
- Volunteers
- 186 people, healthy volunteers welcome
- Sponsor
- Thomas Jefferson University
Family Research
Zentangle to Promote Family Well-being in Hong Kong
In the past few decades, Information and Communications Technology (ICT) have rapidly developed as effective, and probably the most cost-effective tools to connect most aspects of family lives.
- Trial name
- NCT04702438
- Testing
- ICT activities
- Where
- Hong Kong
- Volunteers
- 100 people, healthy volunteers welcome
- Sponsor
- The University of Hong Kong
Public and Patient Involvement, Patient Participation
Use of Involvement Matrix in Cerebral Palsy Into Spain and Brazil
Application of Involvement Matrix in young people with Cerebral Palsy (GMFCS levels IV and V) from 12 to 17 years old with the purpose of improving the participation of this group in community leisure activities
- Conditions
- Public and Patient Involvement, Patient Participation, Family Research, Participation
- Trial name
- InMatrix-CP (NCT05214352)
- Testing
- co-design in the intervention manual elaboration to increase the participation in the community
- Where
- Spain
- Volunteers
- 24 people
- Sponsor
- University of Castilla-La Mancha
Self-Help Devices, Long-Term Care
Assistive Device Rental/Purchase, LTC Service Use, and Caregiver Burden in Taiwan
The goal of this observational study is to examine the associations between assistive device approval and acquisition modality (rental or purchase), long-term care service utilization, and family caregiver burden among…
- Conditions
- Self-Help Devices, Long-Term Care, Caregiver Burden, Health Services Research
- Trial name
- NCT07782047
- Where
- Taiwan
- Volunteers
- 161,771 people
- Sponsor
- National Health Research Institutes, Taiwan
Disturbances in Initiating and Maintaining Sleep, Parent-Child Relations
Play2Sleep: Using Play to Improve Infant Sleep
The objective of this study is to evaluate and explore the effectiveness of Play2Sleep on families of infants with infant sleep disturbances.
- Trial name
- NCT02742155
- Testing
- Play2Sleep, Comparison
- Where
- 9 sites in Canada
- Volunteers
- 136 people, healthy volunteers welcome
- Sponsor
- University of Calgary
Family Centered Care
The Effect of Parental Presence on Pain and Anxiety Levels During Peripheral Intravenous Catheterization in Infants
Children's changing emotional and physical needs, continuous, comprehensive, accessible, coordinated and family requires a centered care.Parental presence during invasive procedures is important in family-centered-care.
- Trial name
- NCT04378673
- Testing
- not interventional
- Where
- Turkey (Türkiye)
- Volunteers
- 120 people, healthy volunteers welcome
- Sponsor
- Bagcilar Training and Research Hospital
Nephronophthisis, NPH1
Research of Therapeutic Targets in the Frame of Nephronophthisis and Renal Associated Ciliopathies
Nephronophthisis (NPH) is an autosomal recessive, genetically heterogeneous disease, with mutations identified in over 20 genes (notably NPHP1 and NPHP4).
- Conditions
- Nephronophthisis, NPH1, Autosomal, Recessive
- Trial name
- NPH1 (NCT06648044)
- Testing
- Description: Research of therapeutic targets in the frame of nephronophthisis and renal associated ciliopathie
- Where
- France
- Volunteers
- 310 people, healthy volunteers welcome
- Sponsor
- Imagine Institute
Implementation Research
Implementation of Naturalistic Developmental Behavioral Intervention (NDBI) Through Coaching Caregivers of Young Autistic Children
Naturalistic developmental behavioral interventions (NDBIs) are a newer class of evidence-based interventions for young autistic children to promote their positive developmental or behavioral outcomes.
- Trial name
- NCT06923553
- Testing
- NDBIs
- Where
- United States
- Volunteers
- 50 people
- Sponsor
- University of Texas at Austin
Frontotemporal Degeneration(FTD), Primary Progressive Aphasia(PPA)
UPenn Observational Research Repository on Neurodegenerative Disease
The aim of this study is to create a repository of both cross-sectional and longitudinal data, including cognitive, linguistic, imaging and biofluid biological specimens, for neurodegenerative disease research and treatment.
- Conditions
- Frontotemporal Degeneration(FTD), Primary Progressive Aphasia(PPA), Familial Frontotemporal Lobar Degeneration (fFTLD), Amyotrophic Lateral Sclerosis(ALS)
- Trial name
- UNICORN (NCT04715399)
- Testing
- No intervention
- Where
- United States
- Volunteers
- 1,000 people, healthy volunteers welcome
- Sponsor
- University of Pennsylvania
Neoplasms, Hematologic Neoplasms
Collection of Tissue Specimens From Patients With Solid Tumors or Blood Disorders and Their HLA-Compatible Family Members
This study will collect biological samples for use in research experiments aimed at better understanding the clinical features of certain diseases.
- Conditions
- Neoplasms, Hematologic Neoplasms, Healthy Volunteers
- Trial name
- NCT00071045
- Where
- United States
- Volunteers
- 6,000 people, healthy volunteers welcome
- Sponsor
- National Heart, Lung, and Blood Institute (NHLBI)
Liver Failure
Understanding Patient's Knowledge and Use of Acetaminophen
Introduction to Study Objectives: In a joint collaboration of the Centers for Education and Research on Therapeutics (CERTS) at The University of Pennsylvania and the M.D.
- Trial name
- NCT00823758
- Testing
- Focus Groups, Personal Interviews
- Where
- 4 sites in United States
- Volunteers
- 124 people, healthy volunteers welcome
- Sponsor
- M.D. Anderson Cancer Center
Pediatric Obesity
Family-based Lifestyle Intervention Program and Carotenoid Supplementation for Children With Obesity
This is a pilot study of children between the ages of 8 to 11 years of age who are obese and participating in an intense family based intervention with a family-focused multi-component lifestyle intervention.
- Trial name
- NCT02060279
- Testing
- Lifestyle intervention and carotenoid supplements
- Where
- United States
- Volunteers
- 20 people
- Sponsor
- Nemours Children's Clinic
Physical Activity, Healthy Diet
Training Program for Happy Family Kitchen Movement Project
This training program is a part of Happy Family Kitchen Movement Project, which is a community-based research project with 3 main components for data collection - training programs, community-based family interventions and public…
- Conditions
- Physical Activity, Healthy Diet, Family Health, Happiness and Harmony, Quality of Life
- Trial name
- NCT02604108
- Testing
- Physical Exercise, Healthy Diet
- Where
- China
- Volunteers
- 400 people, healthy volunteers welcome
- Sponsor
- The University of Hong Kong
Obesity
Church, Extension and Academic Partners Empowering Healthy Families
The project will address health disparities via a community-engaged approach in partnership with black churches. The long-term goals of this integrated project are to: 1) prevent and reduce childhood obesity through improved…
- Trial name
- EHF (NCT03980262)
- Testing
- Healthy Children, Healthy Families+ (HCHF+), Money Smart
- Where
- United States
- Volunteers
- 109 people, healthy volunteers welcome
- Sponsor
- Virginia Polytechnic Institute and State University
Ankylosing Spondylitis
Multi-omics Database for Integrative Microbiome Analysis in a Cohort of Korean Patients With Ankylosing Spondylitis
Multicenter Human Derivatives Prospective Cohort Study: Clinical information will be collected from patients with ankylosing spondylitis and their families who have provided research consent.
- Trial name
- NCT06076083
- Where
- 2 sites in South Korea
- Volunteers
- 600 people
- Sponsor
- Tae-Hwan Kim
Family Conflict, Family Characteristics
From Conflict to Family Trauma
This project will examine the experience of the researcher as expert in the family court dealing with questions regarding family units, in conflict and children, victims of the family conflict, victims of abuse and neglect, often…
- Conditions
- Family Conflict, Family Characteristics, Family Dysfunctional
- Trial name
- FamilyTrauma (NCT07134322)
- Testing
- The aim of this research is to record how many families go to court for the breakdown of parent-child relationships and to understand how many of these families, one year after the judge's ruling, hav
- Volunteers
- 200 people, healthy volunteers welcome
- Sponsor
- University of Bari Aldo Moro
Substance Abuse, Domestic Violence
Hispanic Men Building Respect Education and Safety/ HoMBRES Manteniendo Respeto, Educacion y Seguridad.
The overall objective of this project is to adapt and enhance HoMBReS (Hispanic Men Building Respect, Education, and Safety within Families /Hombres Manteniendo Respeto, Educacion y Seguridad de Familia), a Center for Disease…
- Conditions
- Substance Abuse, Domestic Violence, HIV/AIDS
- Trial name
- HoMBRES (NCT03730987)
- Testing
- HoMBReS intervention, Families Talking Together (FTT), Diabetes Prevention Intervention
- Where
- United States
- Volunteers
- 244 people, healthy volunteers welcome
- Sponsor
- University of Miami