Clinical trials: Family Caregivers
Family Caregivers
Improving Cancer Family Caregivers' Knowledge and Communication About Care Options
The purpose of this two-year mixed methods study is to develop and test an intervention to improve cancer family caregivers' knowledge of care options (curative, palliative, and hospice care) and goals of care communication as…
- Trial name
- NCT02616107
- Testing
- Managing Cancer Care: A Caregiver's Guide, Symptom Management Toolkit
- Where
- United States
- Volunteers
- 35 people, healthy volunteers welcome
- Sponsor
- Yale University
Family Members of the Patients
Effectiveness of Nurse-led Family Intervention on Stress, Engagement With Patient's Care and Satisfaction Among Primary Caregivers of Chronic Liver Disease Patients Admitted in High Dependency Unit of ILBS, New Delhi
Quasi experimental study to check the effectiveness of Nurse-led family Intervention on stress, engagement with patient care and satisfaction among primary caregivers of chronic liver disease patients admitted in high depency…
- Trial name
- NCT05073341
- Testing
- Nurse-led family intervention
- Where
- India
- Volunteers
- 80 people, healthy volunteers welcome
- Sponsor
- Institute of Liver and Biliary Sciences, India
Autism
To Share or Not To Share: Navigating Disclosure and Stigma Among Family Caregivers of Autistic Young Adults_Group Intervention
This study is a caregiver support program for family caregivers of autistic young adults (ages 18 to 26) as their family members navigate young adulthood.
- Trial name
- NCT07856927
- Testing
- Group Intervention
- Where
- United States
- Volunteers
- 50 people
- Sponsor
- University of Wisconsin, Madison
Rett Syndrome
The Role of Family Functioning in Adaptation to Being a Caregiver of an Individual With Rett Syndrome
Background: Rett syndrome (RS) is a panethnic (affecting all ethnicities) neurodevelopmental (impairment of the growth and development of the brain) disorder affecting primarily females.
- Trial name
- NCT00891956
- Where
- 3 sites in United States
- Volunteers
- 426 people
- Sponsor
- National Human Genome Research Institute (NHGRI)
Caregivers
Evaluating the Carter Institute Caregiver Education Program at the VA
This project implemented and evaluated the Rosalyn Carter Institute's (RCI's) educational and support program for caregivers, "Caring for You, Caring for Me." Specifically, it examined effects of the program upon family…
- Trial name
- NCT00271375
- Testing
- Caring For You, Caring For Me, Caring for you, caring for me + social worker, Control
- Where
- United States
- Volunteers
- 254 people
- Sponsor
- VA Office of Research and Development
Dementia, Nurse Care Coordination
Dyadic, App-supported Collaborative Care Intervention Trial for Family Caregivers of People Living With Dementia
In Germany, approximately 1.8 million individuals are living with dementia, representing a considerable share of those requiring long-term care.
- Conditions
- Dementia, Nurse Care Coordination, Informal Caregiver
- Trial name
- Living@Home (NCT07251088)
- Testing
- Experimental arm
- Where
- 12 sites in Germany
- Volunteers
- 554 people
- Sponsor
- German Center for Neurodegenerative Diseases (DZNE)
MBSR, Caregiver
The Effect of Mindfulness-Based Stress Reduction Program
This randomized controlled study evaluate the effect of the Mindfulness-Based Stress Reduction Program on the state-trait anxiety, hopelessness, self-compassion and care burden of the families of psychotic patients.
- Trial name
- Mindfulness (NCT05245305)
- Testing
- Mindfulness Based Stress Reduction Program
- Where
- Turkey (Türkiye)
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- Mersin University
Resilience, Psychological, Advance Care Planning
Facilitating Advance Care Planning Discussions for People With Advanced Cancer
The aims of this study are to (1) identify the advance care planning deliberation process among 20 dyads of patients with advanced cancer and family caregivers and (2) conduct usability testing among 9 dyads to refine the content…
- Trial name
- NCT06061965
- Testing
- Web-based resilience-building intervention
- Where
- United States
- Volunteers
- 36 people
- Sponsor
- University of Illinois Chicago
Caregiver Burden, Cannabis Use
Skills for Talking About Cannabis for Families of Young Adults With Psychosis
The objectives of this research is to (1) create a family intervention and provider manual to train family members of young people with psychosis (YP-P) who are heavy cannabis users new communication skills to motivate change in…
- Conditions
- Caregiver Burden, Cannabis Use, Expressed Emotion, Communications Skills
- Trial name
- STAC (NCT06961877)
- Testing
- Cannabis Conversation Skills for Families (CCSF)
- Where
- United States
- Volunteers
- 40 people, healthy volunteers welcome
- Sponsor
- University of Washington
Dementia, Alzheimer Disease
Care Ecosystem: Navigating Patients and Families Through Stages of Care
This is a randomized clinical trial evaluating the benefits of a program that supports model care for persons with dementia and their family caregivers. Subjects were recruited from California, Nebraska and Iowa.
- Conditions
- Dementia, Alzheimer Disease, Dementia, Vascular, Lewy Body Disease
- Trial name
- NCT02213458
- Testing
- Navigated Care
- Where
- 2 sites in United States
- Volunteers
- 1,560 people
- Sponsor
- University of California, San Francisco
Caregiver, Stage I Lung Cancer AJCC v7
Multimedia Self-Management Intervention for Lung Cancer Surgery Family Caregivers and Patients
This randomized phase III trial studies how well a multimedia self-management intervention works in preparing family caregivers and patients with stage I-III lung cancer for lung cancer surgery.
- Conditions
- Caregiver, Stage I Lung Cancer AJCC v7, Stage IA Lung Cancer AJCC v7, Stage IB Lung Cancer AJCC v7
- Trial name
- NCT03686007
- Testing
- Informational Intervention, Media Intervention
- Where
- United States
- Volunteers
- 380 people
- Sponsor
- City of Hope Medical Center
Mental Health Issue, Grief
Telehealth to Reduce Mental Health in Family Caregivers
The overarching goal of this project is to evaluate if evidence-based interventions can reduce PDG, burden, and stress in informal caregivers of individuals with dementia when provided over telehealth.
- Conditions
- Mental Health Issue, Grief, Burden, Caregiver
- Trial name
- NCT05696704
- Testing
- Behavioral: Mindfulness Based Cognitive Therapy, Behavioral: Behavior Activation
- Where
- United States
- Volunteers
- 60 people
- Sponsor
- Texas Tech University
Dementia
Effects and Costs of a Day Care Centre Program Designed for People With Dementia
Attending day care centres with programs specifically designed for patients with dementia is believed to postpone admittance to nursing home as well as increase quality of life and well-being for both patients and their family…
- Trial name
- ECOD (NCT01943071)
- Testing
- Day care for patients with dementia
- Where
- Norway
- Volunteers
- 261 people
- Sponsor
- Norwegian Centre for Ageing and Health
Cerebral Palsy
Effects of Associated Impairments on Activity and Participation in Children With Cerebral Palsy
This study will investigate the effects of associated impairments on the activity levels and social participation of school-aged children with Cerebral Palsy (aged 6-12) and their impact on their families' quality of life and…
- Trial name
- NCT06944171
- Where
- Turkey (Türkiye)
- Volunteers
- 107 people
- Sponsor
- Hacettepe University
Mild Cognitive Impairment
PRIMA Intervention for Adults With Mild Cognitive Impairment and Their Caregivers
The investigators developed and tested the Daily Engagement in Meaningful Activities (DEMA) intervention to improve life satisfaction and health outcomes for patients and caregivers.
- Trial name
- PRIMA (NCT04515875)
- Testing
- Daily Engagement Meaningful Activity (DEMA), Information Support (IS)
- Where
- United States
- Volunteers
- 420 people
- Sponsor
- Indiana University
Mild Cognitive Impairment
Intervention Program for Patients With Mild Cognitive Impairment
Mild Cognitive Impairment (MCI) is a syndrome defined as a cognitive decline that is more severe than can be explained by an individual's age and education.
- Trial name
- NCT02670850
- Testing
- Family Caregiver Intervention Program
- Where
- Taiwan
- Volunteers
- 60 people
- Sponsor
- Chang Gung Memorial Hospital
Dementia, Alzheimer Disease
REmote Assessment and Dynamic Response Intervention II
The purpose of the READyR II Study is to test a dynamic tailoring phase of a remote assessment for changing dementia-related care needs.
- Conditions
- Dementia, Alzheimer Disease, Relationship, Marital, Caregiver Stress Syndrome
- Trial name
- READyR-II (NCT04686838)
- Testing
- READyR II: A, READyR II: B
- Where
- United States
- Volunteers
- 30 people
- Sponsor
- Oregon Health and Science University
Frontotemporal Dementia, Caregiver Burden
STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners
The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons…
- Conditions
- Frontotemporal Dementia, Caregiver Burden, Primary Progressive Aphasia (PPA), Corticobasal Syndrome
- Trial name
- STELLA-FTD (NCT06613204)
- Testing
- STELLA-FTD Control, STELLA-FTD Test
- Where
- United States
- Volunteers
- 640 people, healthy volunteers welcome
- Sponsor
- Oregon Health and Science University
Smoking, Smoking Cessation
Treating Caregivers Who Smoke at AFCH
The purpose of this research study is to 1) see if a smoking cessation program is something that caregivers will use while their child is hospitalized, 2) see if caregivers think this program is something we should institute…
- Trial name
- NCT06051474
- Testing
- Nicotine Replacement Product
- Where
- United States
- Volunteers
- 23 people, healthy volunteers welcome
- Sponsor
- University of Wisconsin, Madison
Dementia, Depression
3D Team Care for Cognitively Vulnerable Older Adults
This study addresses how to achieve better outcomes for cognitively vulnerable community-dwelling older adults and their families.
- Conditions
- Dementia, Depression, Delirium
- Trial name
- NCT02945085
- Testing
- Home Based Care Team, Telephone Based Care Team
- Where
- United States
- Volunteers
- 506 people
- Sponsor
- UConn Health