Clinical trials: Burden, Caregiver
Spinal Cord Injuries, Caregiver Burden
Co-developing a Novel Intervention to Promote Wellbeing of Family Caregivers of Individuals With Spinal Cord Injury
Family caregivers of individuals with spinal cord injury (SCI) provide the majority of care and are at high risk of experiencing caregiver burden, which not only impacts caregivers' own wellbeing, but also their ability to…
- Trial name
- NCT06364813
- Testing
- COMPANION eHealth Program
- Volunteers
- 40 people, healthy volunteers welcome
- Sponsor
- University of British Columbia
Stress Disorders, Post-Traumatic
Evaluation of PTSD Family Coach, a Mobile Phone App for Family Members of Individuals With PTSD
The proposed pilot study is designed to test the feasibility, acceptability, and potential effectiveness of a mobile phone application (app) developed by the VA National Center for PTSD (VA NCPTSD) for use by family members of…
- Trial name
- NCT02486705
- Testing
- PTSD Family Coach Full, PTSD Family Coach Basic
- Where
- United States
- Volunteers
- 242 people, healthy volunteers welcome
- Sponsor
- VA Palo Alto Health Care System
Dementia Caregiver
Dementia Family Caregiver Study
The proposed study will test a 3-month, community health worker (CHW) delivered home visit, culturally and language-appropriate intervention for ethnic and underserved dementia family caregivers of persons with dementia (PWD)…
- Trial name
- NCT04894006
- Testing
- Community Health Worker (CHW) Home Visit Intervention, Attention Control Group with WIoT Technology, Usual Care
- Where
- United States
- Volunteers
- 332 people, healthy volunteers welcome
- Sponsor
- University of California, Irvine
Care Burden, Schizophrenia
The Effect of Acceptance and Commitment Therapy Intervention on Caregiver Burden in Caregivers of Schizophrenia Patients
The aim of this study was to learn the effects of Acceptance and Commitment Therapy based stress management program on psychological flexibility and caregiver burden in caregivers of schizophrenia patients.
- Conditions
- Care Burden, Schizophrenia, Caregiver Mental Health
- Trial name
- NCT06799325
- Testing
- acceptance and commitment therapy based stress management program
- Where
- Turkey (Türkiye)
- Volunteers
- 60 people
- Sponsor
- Cumhuriyet University
Thyroid Eye Disease, TED
Psychological Burden of Thyroid Eye Disease
This interview study aims to look in depth at the quality of life of people living with TED and their caregivers, with emphasis on impact on mood, relationships, work/education, and leisure.
- Trial name
- NCT07444190
- Testing
- focus groups and individual interviews as well as filling out questionnaires
- Where
- United States
- Volunteers
- 20 people
- Sponsor
- Thomas Jefferson University
Chronic Kidney Disease
Peer-mentoring, Quality of Life and Caregiver Burden in Patients With Chronic Kidney Disease and Their Caregivers
Receiving supportive mentoring from well-adjusted individuals who share similar experiences has had a positive influence on adjustment with some chronic diseases.
- Trial name
- NCT02429115
- Testing
- Mentoring
- Where
- United States
- Volunteers
- 241 people, healthy volunteers welcome
- Sponsor
- Milton S. Hershey Medical Center
Family Caregiving for a Palliative Patient
Supporting Family Caregivers of Palliative Patients at Home: the Carer Support Needs Assessment Intervention
In this project the investigators will train home care nurses to use the Carer Support Needs Assessment Tool (CSNAT) with a group of family caregivers (intervention group) and then compare the family caregivers' quality of life…
- Trial name
- CSNAT (NCT02261935)
- Testing
- Existing home care nursing practice, Practice support tool intervention
- Where
- Canada
- Volunteers
- 130 people
- Sponsor
- Kelli Stajduhar
Alzheimer Dementia, Family Caregivers
Rehabilitation of Facial Emotion Recognition in Alzheimer's Disease
This study aims to evaluate impacts of an emotion recognition rehabilitation program, named Training of Affect Recognition, on social cognition abilities in Alzheimer's disease (AD).
- Trial name
- EYE-TAR(MA) (NCT04730440)
- Testing
- AD-TAR, AD-Cognitive Stimulation
- Volunteers
- 8 people
- Sponsor
- Centre Hospitalier Princesse Grace
Acceptance and Commitment Therapy, Caregiver Burden
Acceptance and Commitment Therapy (ACT) Tele-Counselling
A randomized 2-group controlled trial will be conducted to explore the potential effect and potential feasibility of a new Acceptance and Commitment Therapy (ACT) tele-counselling program to improve mental health services for…
- Conditions
- Acceptance and Commitment Therapy, Caregiver Burden, Digital Health, Technology
- Trial name
- NCT05385458
- Testing
- ACT Intervention, Usual Care
- Where
- Canada
- Volunteers
- 30 people, healthy volunteers welcome
- Sponsor
- University of New Brunswick
Psychological Distress
Ensemble Programme an Early Intervention for Informal Caregivers of Psychiatric Patients
This study focuses on the difficulties of maintaining optimal psychological health and quality of life for caregivers in adult psychiatry while they play an important role in helping patients with severe psychiatric disorders.
- Trial name
- Ensemble (NCT04020497)
- Testing
- Ensemble programme, SAU
- Where
- Switzerland
- Volunteers
- 160 people, healthy volunteers welcome
- Sponsor
- Institut et Haute Ecole de la Santé la Source
Caregiver Burden, Psychological Resilience
Nurse-Led Psychoeducation for Caregivers Receiving Home Health Care (N-PRO CARE)
This randomized controlled trial aimed to examine the effect of a nurse-led psychoeducation programme on self-efficacy and psychological resilience among caregivers of patients receiving home health care.
- Conditions
- Caregiver Burden, Psychological Resilience, Self-Efficacy
- Trial name
- N-PRO CARE (NCT07434440)
- Testing
- Nurse-Led Psychoeducation Programme, routine follow-up
- Where
- Turkey (Türkiye)
- Volunteers
- 42 people
- Sponsor
- Karabuk University
Dementia, Music Therapy
Music Effects on Dementia
Older adults constitute a population whose age-related physiological and cognitive changes predispose them to conditions that are less likely to occur in younger individuals.
- Conditions
- Dementia, Music Therapy, Caregiver Burden of People With Dementia, Neuropsychiatric Symptom
- Trial name
- NCT07542535
- Testing
- Music Therapy
- Where
- Mexico
- Volunteers
- 7 people
- Sponsor
- Instituto Nacional de Geriatria, Mexico
Caregiver Burden, Caregiver Burnout
Peer Support for Family Caregivers of Older Adults Living With Dementia
Family caregivers of people living with dementia are at high risk of poor health when caregiving for their loved one. Peer Support for Family Caregivers of Older Adults Living with Dementia (Pair 2 Care©) is a simple…
- Conditions
- Caregiver Burden, Caregiver Burnout, Caregiver Anxiety, Alzheimer Disease Dementia
- Trial name
- Pair 2 Care (NCT07868718)
- Testing
- Peer Support, Usual Care
- Where
- United States
- Volunteers
- 344 people
- Sponsor
- Ohio State University
Dementia
BrainLive Connect: Non-professional Delivered CST for People Living With Dementia
The goal of this mixed method study is to evaluate whether the volunteer-led Cognitive Stimulation Therapy (CST) under the BrainLive Connect programme is effective for improving cognitive function and quality of life of people…
- Trial name
- NCT07531589
- Testing
- Cognitive Stimulation Therapy (CST), Usual Care
- Where
- Hong Kong
- Volunteers
- 520 people
- Sponsor
- The University of Hong Kong
Parkinson Disease, Huntington Disease
Group Drum-Based Music Therapy Intervention for Parkinson's Disease/Huntington's Disease
Participants in this study (18-89 years) with Parkinson's disease or Huntington's disease receive drum classes twice a week for 12 weeks (24 lessons).
- Trial name
- NCT05157074
- Testing
- Group Drumming Music Therapy
- Where
- United States
- Volunteers
- 18 people, healthy volunteers welcome
- Sponsor
- Johns Hopkins University
Caregiver Burden, Alzheimer's Disease
WeCareToFeedDysphagia to Reduce Care-partner Burden Full-scale RCT
The goal of this clinical trial is to learn if a newly-created website tool, called WeCareToFeedDysphagia, helps to reduce feelings of burden in care partners of patients with Alzheimer's disease and related dementias (AD/ADRD)…
- Conditions
- Caregiver Burden, Alzheimer's Disease, Dementia, Oropharyngeal Dysphagia
- Trial name
- NCT07250113
- Testing
- WeCareToFeedDysphagia web tool
- Where
- United States
- Volunteers
- 802 people
- Sponsor
- Northwell Health
Childhood Cancer, Childhood Cancers
Examination of the Relationship Between Quality of Life and Caregiving Burden Among Caregivers of Pediatric Oncology Patients
Primary Aim The primary aim of this study is to determine the quality of life and caregiving burden levels of caregivers of pediatric oncology patients and to examine the relationship between these two variables.
- Conditions
- Childhood Cancer, Childhood Cancers, Caregiver Subjective Burden, Primary Caregivers of Children Newly Diagnosed With Cancer
- Trial name
- NCT07308301
- Testing
- Assessment of caregiver quality of life and burden
- Volunteers
- 95 people, healthy volunteers welcome
- Sponsor
- Fatma Beyza Akdeniz
Caregiver
The Effect Of Progressive Relaxation Exercises On The Care Satisfaction
The increase in the elderly population, insufficiencies in chronic diseases cause an increase in the number of dependent and dependent elderly. This situation negatively affects caregivers with elderly individuals.
- Trial name
- NCT04368780
- Testing
- Effect of Progressive Muscle Relaxation Combined With Music
- Where
- 2 sites in Turkey (Türkiye)
- Volunteers
- 20 people
- Sponsor
- Aksaray University
Hereditary Angioedema (HAE)
HAE Burden and Crisis Management
The study has been designed as a French, multicentric survey study to obtain data to describe the burden of on-demand treatment for patients with hereditary angioedema (HAE).
- Trial name
- ECRINS (NCT06806618)
- Where
- France
- Volunteers
- 300 people
- Sponsor
- University Hospital, Grenoble
Mental Disorder, Burnout, Professional
Professional Quality of Life in German Mental Health Nursing
The purpose of this study is to assess professional quality of life in German nurses working with patients with mental disorders.
- Conditions
- Mental Disorder, Burnout, Professional, Burnout, Caregiver
- Trial name
- NCT04200300
- Testing
- Online questionnaire
- Where
- Germany
- Volunteers
- 360 people
- Sponsor
- Charite University, Berlin, Germany