Clinical trials: Patient Reported Outcome (PRO)
Freeman-Burian Syndrome, Freeman-Sheldon Syndrome
Survey Study and Records Review of Treatment Outcomes in Freeman-Sheldon Syndrome
The purpose of this study is to evaluate the difference in diagnosis accuracy, treatment outcomes, patient perspectives, facial function and walking ability, emotional and social health, and respiratory complications between…
- Conditions
- Freeman-Burian Syndrome, Freeman-Sheldon Syndrome, Whistling Face Syndrome, Sheldon-Hall Syndrome
- Trial name
- FINDFSS (NCT05419245)
- Testing
- Guided Health History for Freeman-Burian Syndrome Questionnaire, Freeman-Burian syndrome Semi-Structured Quality of Life Interview, Medical Records Review
- Where
- United States
- Volunteers
- 20 people
- Sponsor
- Dufresne, Craig, MD, PC
Femoroacetabular Impingement, Acetabular Dysplasia
Healthy Hip Study: Conservative Management for Pre-arthritic Hip Disorders
Pre-arthritic hip disorders can cause pain, interfere with daily activities and exercise, and lead to the development of osteoarthritis in young adults.
- Conditions
- Femoroacetabular Impingement, Acetabular Dysplasia, Acetabular Labrum Tear, Hip Pain
- Trial name
- HHS (NCT04069507)
- Where
- United States
- Volunteers
- 88 people
- Sponsor
- Washington University School of Medicine
Patient Reported Outcome Measures, Compliance
Motivating Survey Compliance: Game Play Study 1
Self-reports, especially for patients with chronic physical or mental diseases, are critical for disease research and drug development.
- Trial name
- NCT03738254
- Testing
- The Guardians: A smartphone game, Paper Survey, Electronic Survey
- Where
- United States
- Volunteers
- 232 people, healthy volunteers welcome
- Sponsor
- Massachusetts Institute of Technology
Lupus Erythematosus, Systemic
Validation of Patient E-tool to Measure Systemic Lupus Activity
Validation of a self-questionnaire (SLEDAI-P/LUPIN) completed by the patient to measure the activity of the systemic lupus, in order to improve the patient's empowerment.
- Trial name
- OPTIMISE (NCT05763225)
- Where
- 31 sites in France, Guadeloupe and 1 more
- Volunteers
- 450 people
- Sponsor
- Association Francaise du Lupus et Autres Maladies Auto-immunes (AFL+)
Stable COPD Patients
Latin American Study of 24-hs Symptoms in Chronic Obstructive Pulmonary Disease (COPD) Patients; LASSYC Study
This is a multi-country, multicentre, observational prospective data collection cross sectional study of patients with stable COPD in Latin America.
- Trial name
- LASSYC (NCT02789540)
- Where
- 6 sites in Argentina, Chile and 4 more
- Volunteers
- 900 people
- Sponsor
- AstraZeneca
Arthrosis
Changes in Physical Activity, Sleep and Knee Function After Same-Day Discharge Knee Arthroplasty
The goal of this observational study is to examine changes in physical activity, sleep quality, knee extension and flexion strength, knee range of motion, and patient-reported outcomes before and after same-day discharge knee…
- Trial name
- ORTOMOVE (NCT07840391)
- Testing
- Medial unicompartmental knee arthroplasty (UKA), Total knee arthroplasty (TKA)
- Where
- 2 sites in Finland
- Volunteers
- 120 people
- Sponsor
- Turku University Hospital
Breast Cancer, Patient Reported Outcomes
Breast Cancer Patient Engagement With Patient Reported Outcome Measure Survey
The purpose of this research protocol is to measure Patient Reported Outcome Measures (PROMs) in breast cancer patients. PROM results will be provided to patients and providers and the investigators will evaluate the relationship…
- Trial name
- NCT03995082
- Testing
- Patient Reported Outcome Measure Survey result feedback
- Where
- 3 sites in United States
- Volunteers
- 925 people
- Sponsor
- University of Colorado, Denver