Clinical trials: Patient Participation
Pregnancy Complications, Maternal Care Patterns
Melanated Group Midwifery Care (MGMC)
This study is being conducted to determine if a multi-level intervention for delivering maternity care can improve patient trust and engagement among Black birthing people.
- Conditions
- Pregnancy Complications, Maternal Care Patterns, Patient Engagement
- Trial name
- MGMC (NCT05365815)
- Testing
- Melanated Group Midwifery Care
- Where
- United States
- Volunteers
- 432 people, healthy volunteers welcome
- Sponsor
- University of Illinois Chicago
Child Development Disorders
A Longitudinal Study of Function and Participation in Life Activities of Patients With Developmental Disabilities
A Longitudinal Study of Function and Participation in Life Activities of Patients with Developmental Disabilities
- Trial name
- NCT02930603
- Where
- Taiwan
- Volunteers
- 800 people, healthy volunteers welcome
- Sponsor
- Chang Gung Memorial Hospital
Patient Engagement
Patient Portal Use by Parents of Spanish-Speaking Children
The purpose of this study is to determine whether patient portal access is feasible and useful for Spanish-speaking parents. Participants will be given an electronic tablet and will be taught how to access their child's medical…
- Trial name
- NCT04410380
- Testing
- Electronic tablet provision with teaching
- Where
- United States
- Volunteers
- 25 people, healthy volunteers welcome
- Sponsor
- University of North Carolina, Chapel Hill
Engagement, Patient, Male Peer Recruitment
Peer Led Outreach to Engage Male Partners of Pregnant Women in Uganda (Okutuuka Study)
It is critical to evaluate strategies that leverage women's engagement in antenatal care to increase male partner testing while alleviating the burden on pregnant women to encourage their male partners to HIV test.
- Conditions
- Engagement, Patient, Male Peer Recruitment, HIV Testing, Linkage to Care
- Trial name
- Okutuuka (NCT05388084)
- Testing
- Male peer engagement, SOC and delayed intervention
- Where
- Uganda
- Volunteers
- 150 people, healthy volunteers welcome
- Sponsor
- University of Washington
Burn
The Relationship of Body Function, Participation and Quality of Life in Patients With Burn: A Longitudinal Study
The relationship of body function, participation and quality of life in patients with burn: A longitudinal study
- Trial name
- NCT02950675
- Where
- Taiwan
- Volunteers
- 79 people, healthy volunteers welcome
- Sponsor
- Chang Gung Memorial Hospital
Patient Compliance
Parent Engagement Package: Initial Testing of Strategies to Increase Participation in Parenting Interventions
This study evaluated the effectiveness of strategies for engaging parents into parenting programs. Engagement strategies included a booklet showing testimonial quotes and photos from prior participants, a recommendation to attend…
- Trial name
- NCT03147547
- Testing
- Promotional Brochure, Family Testimonial Flyer, Teacher Endorsement
- Where
- United States
- Volunteers
- 122 people, healthy volunteers welcome
- Sponsor
- Arizona State University
Fear of Cancer Recurrence, Renal Cell Carcinoma (Kidney Cancer)
Patient-partnered Research in Investigating Fear of Cancer Recurrence in Kidney Cancer
The goal of this observational study is to gather real-world information about Fear of Cancer Recurrence (FCR) following surgery in patients with renal cell carcinoma (RCC) and their partners/spouses by 1) establishing a panel…
- Trial name
- PP-RECURK (NCT07234656)
- Testing
- Phase 1: Establishment of a patient-partner panel, Phase 2: Feasibility testing of FCR questions, mode of administration and timing for investigating Fear of Cancer Recurrence
- Where
- 3 sites in Denmark
- Volunteers
- 105 people, healthy volunteers welcome
- Sponsor
- Brigitta Rasmussen Villumsen
Engagement, Patient
Enhancing Engagement With Digital Mental Health Care
This proposal is a partnership between Mental Health America (MHA), a nonprofit mental health advocacy and resource organization, Talkspace (TS), a for-profit, online digital psychotherapy organization, and the University of…
- Trial name
- NCT04507360
- Testing
- Study 1, Demographics Survey, Study 1, Next Steps Survey, Study 1, Generic Response
- Where
- 3 sites in United States
- Volunteers
- 78,390 people, healthy volunteers welcome
- Sponsor
- University of Washington
Anxiety, Depression in Adolescence
Co-designing Adaptations of a Digital Mental Health Intervention (Wysa) for Adolescent Girls With Anxiety or Depression in Rural India
The goal of this study is to culturally and contextually adapt Wysa, an evidence-based AI-powered digital mental health intervention (DMHI), for adolescent girls (ages 13-18) with symptoms of anxiety and/or depression in rural…
- Conditions
- Anxiety, Depression in Adolescence, Anxiety Disorder of Adolescence
- Trial name
- NCT07595029
- Testing
- Digital psychosocial tool
- Volunteers
- 179 people, healthy volunteers welcome
- Sponsor
- Wysa
Autistic Spectrum Disorder, Patient Empowerment
Development and Evaluation of "Period Kits" for Adolescents With Intellectual and Developmental Disabilities
This study will involve the development, distribution, and evaluation of "period kits" for pre-menarchal adolescents with intellectual and cognitive disabilities (IDD) (e.g., autism spectrum disorder and Down syndrome) in…
- Conditions
- Autistic Spectrum Disorder, Patient Empowerment, Menstrual Discomfort
- Trial name
- NCT05497167
- Testing
- Period Kit
- Where
- United States
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- Tufts Medical Center
Physical Activity, Patient Engagement
Active KC: a Text Message Based Intervention for Physical Activity
Active KC will involve delivering PA support tools to individuals interested in increasing their physical activity. The tools involve provision of a Garmin wearable activity monitor and participant-tailored behavior change…
- Trial name
- NCT05110508
- Testing
- Text Based Behavioral Intervention for Physical Activity
- Where
- United States
- Volunteers
- 210 people, healthy volunteers welcome
- Sponsor
- Children's Mercy Hospital Kansas City
Neoplasms
ACS Community Access to Resources Education and Support
The goal of this study is to evaluate the pilot phase of ACS Cares to identify key implementation outcomes and assess effectiveness of the program to improve distress, enhance communication, and reduce missed appointments and…
- Trial name
- ACS CARES (NCT06285929)
- Testing
- ACS CARES Student Navigation
- Where
- 4 sites in United States
- Volunteers
- 2,000 people, healthy volunteers welcome
- Sponsor
- American Cancer Society, Inc.
Cerebral Palsy
A Longitudinal Study of Movement and Participation in Patients With Cerebral Palsy
The primary goal of this study is to establish and evaluate an image-based biomarker for the impaired motor control and sensory information processing present in Cerebral palsy (CP) patients
- Trial name
- NCT01903603
- Where
- Taiwan
- Volunteers
- 80 people, healthy volunteers welcome
- Sponsor
- Chang Gung Memorial Hospital
HIV Infections
Determining Characteristics and Behaviors of Adolescent Women Regarding HIV Risk and Microbicide Trial Participation
This study will examine characteristics and behaviors of young women in India and Tanzania to determine which challenges and opportunities exist for conducting future trials of HIV prevention treatments.
- Trial name
- NCT00872261
- Where
- Tanzania
- Volunteers
- 135 people, healthy volunteers welcome
- Sponsor
- FHI 360
Arrythmia
Patient Engagement Study to Evaluate the Use of Biological Therapies for Cardiac Arrhythmias
In this patient engagement study, patients and partners will attend a presentation, group meeting and responding to the survey to help the research team gage the acceptability of using a biological therapy to prevent cardiac…
- Trial name
- NCT05032495
- Testing
- Surveys, Focus group
- Where
- Canada
- Volunteers
- 22 people, healthy volunteers welcome
- Sponsor
- Ottawa Heart Institute Research Corporation
Psychiatric Disorder
Pilot Study of the Vermont Family Based Approach in Primary Care Pediatrics
This pilot randomized controlled trial of the Vermont Family Based Approach (VFBA) tested the feasibility of the VFBA in primary care pediatrics and its effects on children's and parents' emotional and behavioral problems and…
- Trial name
- NCT04412590
- Testing
- Vermont Family Based Approach, Treatment as Usual
- Where
- United States
- Volunteers
- 90 people, healthy volunteers welcome
- Sponsor
- University of Vermont Medical Center
Cystic Fibrosis
Changes in Adherence After Playing "My Life With CF" Game
Nonadherence to treatment regimes among patients with cystic fibrosis (CF) is well documented in the literature. Unfortunately, few interventions have been successful at improving adherence rates in this patient population.
- Trial name
- NCT00688051
- Testing
- My Life with CF game
- Where
- United States
- Volunteers
- 30 people, healthy volunteers welcome
- Sponsor
- Children's Mercy Hospital Kansas City
Knee Osteoarthritis
Investigating the Role of Motivational Interviewing in Swedish Patients Undergoing Knee Arthroplasty
Knee arthroplasty is a successful surgical treatment for end-stage osteoarthritis. Most patients are satisfied with the result, however, 10% of the patients have remained dissatisfied over the last decades despite the advantages…
- Trial name
- NCT05940246
- Testing
- Motivational Interviewing
- Where
- Sweden
- Volunteers
- 149 people, healthy volunteers welcome
- Sponsor
- Region Stockholm
Patient Participation, Pediatric ALL
Inclusion Appeal Videos and Intent to Register for Pediatric Clinical Trials
An informational video about joining a Research Notification Registry is being compared with a version of the video tailored to African/ African American parents, reminding them about the importance of their being included in…
- Trial name
- NCT06138145
- Testing
- Video, Survey
- Where
- United States
- Volunteers
- 125 people, healthy volunteers welcome
- Sponsor
- University of Pennsylvania
Type 1 Diabetes in Children
Patient With Any Pathology (According to the Appreciation of the Investigator) Which Could Disturb the Participation in the Study
The objective of the study is to quantify the products of non-enzymatic glycation of proteins (called AGEs for advanced glycation end-products) in serum of type 1 diabetic patients without clinical complications in order to…
- Trial name
- AGEDIA (NCT02793427)
- Testing
- blood sample collection
- Where
- France
- Volunteers
- 160 people, healthy volunteers welcome
- Sponsor
- CHU de Reims