Clinical trials: Patient Participation
Patient-controlled Admissions, Matched Control Group
Patient-controlled Admissions to Inpatient Care
Patient-controlled admissions refer to the possibility for patients with severe psychiatric conditions to admit themselves to inpatient care.
- Trial name
- NCT04862897
- Testing
- Patient-controlled admissions
- Where
- Sweden
- Volunteers
- 564 people
- Sponsor
- Karolinska Institutet
Child Development, Physical Disability
Children Participation Assessment Scale
Increasing the number of Turkish versions of questionnaires evaluating participation will increase the variety of assessment methods.
- Conditions
- Child Development, Physical Disability, Participation, Patient
- Trial name
- NCT05107518
- Testing
- Children Participation Assessment Scale
- Where
- Turkey (Türkiye)
- Volunteers
- 250 people, healthy volunteers welcome
- Sponsor
- Gazi University
Engagement, Patient
QT-Digital Mental Health Engagement Study
Sexual and gender minority (SGM) populations are disproportionately impacted by mental health concerns relative to their heterosexual and cisgender peers.
- Trial name
- QT-DIMES (NCT07278765)
- Testing
- HAPA Engagement Strategies
- Where
- 2 sites in United States
- Volunteers
- 2,300 people, healthy volunteers welcome
- Sponsor
- University of Washington
Autism Spectrum Disorder, Executive Function
The Effect of Cognitive Orientation Approach on Daily Occupational Performance With Autism Spectrum Disorder
The goal of this clinical trial is by using the Cognitive Orientation Approach on Daily Occupational Performance, which is also supported by the literature and applied by occupational therapists, in children diagnosed with Autism…
- Conditions
- Autism Spectrum Disorder, Executive Function, Patient Participation
- Trial name
- NCT06038435
- Testing
- Cognitive Orientation Approach, Ayres Sensory Integration Therapy
- Where
- Turkey (Türkiye)
- Volunteers
- 26 people
- Sponsor
- Bezmialem Vakif University
Video-based Task Oriented Activity Training
Video-Based Task Oriented Activity Training in Patients With Juvenile Idiopathic Arthritis
Juvenile idiopathic arthritis (JIA) is most common chronic rheumatic disease in childhood. The upper extremity involvement in JIA causes muscle imbalance, joint destruction, pain, stiffness and limitations on daily living…
- Trial name
- NCT02954718
- Testing
- activity training
- Volunteers
- 50 people
- Sponsor
- Istanbul University
Public and Patient Involvement, Patient Participation
Use of Involvement Matrix in Cerebral Palsy Into Spain and Brazil
Application of Involvement Matrix in young people with Cerebral Palsy (GMFCS levels IV and V) from 12 to 17 years old with the purpose of improving the participation of this group in community leisure activities
- Conditions
- Public and Patient Involvement, Patient Participation, Family Research, Participation
- Trial name
- InMatrix-CP (NCT05214352)
- Testing
- co-design in the intervention manual elaboration to increase the participation in the community
- Where
- Spain
- Volunteers
- 24 people
- Sponsor
- University of Castilla-La Mancha
Genetic Predisposition
Next Generation to Identify Genetic Causes of Disease in Patients Participating in NICHD Clinical Protocols
Background: The purpose of this study is to identify changes in genes that cause human diseases. We would like to obtain some of you or your child s DNA and test for changes in genes that may contribute to a disease in you or…
- Trial name
- NCT01375543
- Where
- United States
- Volunteers
- 128 people
- Sponsor
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Child Development Disorders
A Longitudinal Study of Function and Participation in Life Activities of Patients With Developmental Disabilities
A Longitudinal Study of Function and Participation in Life Activities of Patients with Developmental Disabilities
- Trial name
- NCT02930603
- Where
- Taiwan
- Volunteers
- 800 people, healthy volunteers welcome
- Sponsor
- Chang Gung Memorial Hospital
Breast Cancer, Clinical Trials
Knowledge and Perception of Clinical Trial Participation in Breast Cancer Patients in Egypt
Clinical trials are essential to translate new therapy concepts or rather any intervention into the medical routine. Beside the well designed trial protocol, the success of clinical trials depends on patient recruitment and…
- Trial name
- NCT04569955
- Testing
- Knowledge and perception of clinical trial participation
- Where
- Egypt
- Volunteers
- 300 people
- Sponsor
- Ain Shams University
Systemic Lupus Erythematosus
Observational Study Investigating Demographic and Clinical Characteristics of SLE Patients in Egypt
Systemic lupus erythematosus (SLE) is an autoimmune condition characterized by a complicated, unclear etiology that involves various complex factors.
- Trial name
- ROSE (NCT07144514)
- Volunteers
- 276 people
- Sponsor
- AstraZeneca
Leber's Hereditary Optic Neuropathy
RHODOS Follow-up Single-visit Study
This study aims to evaluate the current visual acuity of SNT-II-003 participants and compare this with the last visit from the SNT-II-003 study.
- Trial name
- RHODOS-OFU (NCT01421381)
- Where
- 3 sites in Canada, Germany and 1 more
- Volunteers
- 60 people
- Sponsor
- Santhera Pharmaceuticals
Head and Neck Neoplasms
Needs Assessment Tool Integrated in Clinical Practice of Head and Neck Cancer Rehabilitation
The study tests a needs assessment and decision-making tool with patients who are in need of rehabilitation after surgery for Head and Neck Cancer. The purpose is to enhance patient involvement in decision-making.
- Trial name
- NEAT (NCT03443258)
- Testing
- Needs assesment tool integrated in nursing consultation.
- Where
- Denmark
- Volunteers
- 93 people
- Sponsor
- Copenhagen University Hospital, Rigshospitalet
Breast Cancer
Study of Estrogen Levels in Premenopausal Women Who Have Undergone Surgery for Breast Cancer and Are Receiving Triptorelin and Tamoxifen Citrate or Exemestane on Clinical Trial IBCSG 24-02
RATIONALE: Studying samples of blood from patients with breast cancer in the laboratory may help doctors learn how well triptorelin given together with tamoxifen citrate or exemestane works in lowering estrogen levels.
- Trial name
- SOFT-EST (NCT00975676)
- Testing
- gas chromatography / tandem mass spectometry
- Where
- 24 sites in France, Hungary and 6 more
- Volunteers
- 123 people
- Sponsor
- ETOP IBCSG Partners Foundation
Adolescent Idiopathic Scoliosis
Comparing Use of Radiographs Versus Patient Empowerment (CURVE)
Objective: To evaluate the (cost-)effectiveness of a new patient-empowered follow up (FU) protocol in patients with Adolescent idiopathic Scoliosis (AIS) that is based on patient-reported outcome measures (PROMs), self-assessment…
- Trial name
- CURVE (NCT05379127)
- Testing
- Patient-empowered follow up, Standard follow-up
- Where
- 23 sites in Netherlands
- Volunteers
- 812 people
- Sponsor
- Radboud University Medical Center
Autistic Spectrum Disorder, Patient Empowerment
Development and Evaluation of "Period Kits" for Adolescents With Intellectual and Developmental Disabilities
This study will involve the development, distribution, and evaluation of "period kits" for pre-menarchal adolescents with intellectual and cognitive disabilities (IDD) (e.g., autism spectrum disorder and Down syndrome) in…
- Conditions
- Autistic Spectrum Disorder, Patient Empowerment, Menstrual Discomfort
- Trial name
- NCT05497167
- Testing
- Period Kit
- Where
- United States
- Volunteers
- 50 people, healthy volunteers welcome
- Sponsor
- Tufts Medical Center
Hypercholesterolemia, Cardiovascular Risk
Effectiveness of a Shared Decision Aid Tool for Cardiovascular Risk Prevention in Hypercholesterolemic Patients
BACKGROUND: Mediterraneans have traditionally a low cardiovascular risk, although emerging lifestyles might change the trend. The aim of this study is to assess if hypercholesterolemic patient involvement in the preventive…
- Trial name
- PLEGATS (NCT01308866)
- Testing
- Share decision tool
- Where
- 2 sites in Spain
- Volunteers
- 298 people
- Sponsor
- Fundacio d'Investigacio en Atencio Primaria Jordi Gol i Gurina
Hypertension
Study on Impact of Patient-Held Guidelines on Blood Pressure
While patient held guidelines for the management of chronic diseases have been employed in some countries. There is little evidence of their effectiveness in improving patient outcomes.
- Trial name
- NCT00148434
- Testing
- Patient-held guideline for hypertension
- Where
- United Kingdom
- Volunteers
- 300 people
- Sponsor
- Ashgrove Research Practice
Neuromuscular Diseases
Reliability Study of a Motor Function Measure Digitalized Playful Completion Modules
Neuromuscular diseases include more than 200 rare disorders affecting muscles or the nervous system. Functional scales assessing motor function are tools allowing to measure the evolution of motor impairment of patients with a…
- Trial name
- MFM-Play (NCT05227274)
- Testing
- Items completion with or without a MFM-Play
- Where
- 10 sites in France
- Volunteers
- 70 people
- Sponsor
- Hospices Civils de Lyon
Patient Empowerment
Actions for Empowered Maternal Neonatal Care (ACUNE): A Nursing Intervention
The quality of care premature infants receive at home after hospital discharge is critical to their health and well-being. Premature infants require special care, which is why Neonatal Intensive Care Units (NICUs) have processes…
- Trial name
- ACUNE (NCT05005988)
- Testing
- Actions for Empowered Maternal Neonatal Care
- Where
- Colombia
- Volunteers
- 30 people
- Sponsor
- Universidad de Antioquia
Fear of Cancer Recurrence, Renal Cell Carcinoma (Kidney Cancer)
Patient-partnered Research in Investigating Fear of Cancer Recurrence in Kidney Cancer
The goal of this observational study is to gather real-world information about Fear of Cancer Recurrence (FCR) following surgery in patients with renal cell carcinoma (RCC) and their partners/spouses by 1) establishing a panel…
- Trial name
- PP-RECURK (NCT07234656)
- Testing
- Phase 1: Establishment of a patient-partner panel, Phase 2: Feasibility testing of FCR questions, mode of administration and timing for investigating Fear of Cancer Recurrence
- Where
- 3 sites in Denmark
- Volunteers
- 105 people, healthy volunteers welcome
- Sponsor
- Brigitta Rasmussen Villumsen