Turner SyndromeTURNERNCT07344012
Parental Project Amongst 93 Patients With Turner Syndrome
An observational study of Turner Syndrome, run by University Hospital, Strasbourg, France at 1 site in France.
Trial summary
The aim is to describe the parental project, spontaneous pregnancies and pregnancies resulting from egg donation or adoption in women diagnosed with Turner syndrome treated at Strasbourg University Hospitals. Read more about this study
- Who is it for?
- Ages 18 to 40 years, women only
- Conditions the study is for
- Turner Syndrome
- How many people
- 93 participants
- Where
- 1 siteFrance
- Study dates
- 18 Nov 2025to 18 Nov 2027
- Phase
- Observational
- Are there results?
- Not yet: the study is under way
Key requirements
Who can take part, as listed by the sponsor. Only the study team can confirm whether you are eligible, so take this list to your doctor.
- Ages 18 to 40 years
- Women only
- No healthy volunteers
- Adult
Study population: Adult women having presented with Turner syndrome confirmed by karyotyping and having expressed a desire to become a parent during consultation
Who may be able to join
- Adult women (≥18 years old)
- Treated at Strasbourg University Hospitals for a parental project during the period from January 1, 2009, to December 31, 2019
- Having presented with Turner syndrome confirmed by karyotyping
- Having expressed a desire to become a parent during consultation
Who cannot join
- No desire to become a parent or missing data
- Missing data
Trial locations and contacts
1 site in 1 country. Contact the study team or a site near you to ask about taking part.
France1 site, 1 recruiting
- Recruiting
Service d'Endocrinologie, Diabétologie, Nutrition - CHU de Strasbourg - France
Strasbourg, 67091
Thibault BAHOUGNE, MD, 33 3.88.12.78.99, thibault.bahougne@chru-strasbourg.fr
Thibault BAHOUGNE, MD
About this study
The aim is to describe the parental project, spontaneous pregnancies and pregnancies resulting from egg donation or adoption in women diagnosed with Turner syndrome treated at Strasbourg University Hospitals.
- Conditions
- Turner Syndrome
- Keywords
- Turner Syndrome
- Medical subject headings
- Turner Syndrome
What is being measured
The primary outcome is the main question the study is designed to answer.
Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents
Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents:
Example:
If 10 women try to have a child and 3 succeed, the success rate is 30%.
Measured: Up to 24 months
Timeline
From the start of the study to its completion; the mark is today. Estimated dates are the sponsor’s plan.
- First posted15 Jan 2026
- Study start18 Nov 2025
- Primary completionNov 2027 (estimated)
- Study completion18 Nov 2027 (estimated)
Resources
- Official record on ClinicalTrials.govThe registry entry this page is built from, with its full change history.
- Other trials for Turner SyndromeStudies of the same condition, open and under way.
- More trials run by University Hospital, Strasbourg, FranceThe sponsor's other registered studies.
- What the trial phases meanHow a treatment moves from first tests in people to approval.
More details
For doctors and researchers: how the study is designed, who runs it, and its registry IDs.
Study design
- Study type
- Observational
- Observational model
- Case only
- Time perspective
- Retrospective
- Enrolment
- 93 participants (estimated)
Sponsor and investigators
- Lead sponsor
- University Hospital, Strasbourg, France
- Sponsor type
- University, hospital or other
- Responsible party
- Sponsor
IDs, dates and publications
- ClinicalTrials.gov ID
- NCT07344012
- Sponsor's protocol ID
- 9945
- Acronym
- TURNER
- Status last verified
- Jan 2026
- First submitted
- 7 Jan 2026
- Last updated
- 15 Jan 2026
- Results posted
- No
- Data monitoring committee
- No
- FDA-regulated drug
- No
- FDA-regulated device
- No
Study at a glance
From the registry record, last updated by the sponsor on 15 Jan 2026. Recruitment status is as the sponsor reported it: confirm with the study team.
- Official title
- Parental Project Amongst 93 Patients With Turner Syndrome
- ClinicalTrials.gov ID
- NCT07344012
- Acronym / sponsor ID
- TURNER / 9945
- Conditions
- Turner Syndrome
- Keywords
- Turner Syndrome
- Study type
- Observational
- Recruitment status
- Recruiting
- Enrolment
- 93 participants (estimated)
- Lead sponsor
- University Hospital, Strasbourg, FranceUniversity, hospital or other
- Study start
- 18 Nov 2025 (actual)
- Primary completion
- Nov 2027 (estimated)
- Study completion
- 18 Nov 2027 (estimated)
- First posted
- 15 Jan 2026 (actual)
- Results
- Not posted in the source record
Clinical summary
The research question as the sponsor registered it. This describes what the study plans to test, not what it found.
The aim is to describe the parental project, spontaneous pregnancies and pregnancies resulting from egg donation or adoption in women diagnosed with Turner syndrome treated at Strasbourg University Hospitals.
Study design
- Observational model
- Case only
- Time perspective
- Retrospective
Who may qualify
- Ages
- 18 to 40 years
- Sex
- Female only
- Healthy volunteers
- Not accepted
- Age groups
- Adult
- Study population
- Adult women having presented with Turner syndrome confirmed by karyotyping and having expressed a desire to become a parent during consultation
Key inclusion criteria (4 listed)
- Adult women (≥18 years old)
- Treated at Strasbourg University Hospitals for a parental project during the period from January 1, 2009, to December 31, 2019
- Having presented with Turner syndrome confirmed by karyotyping
- Having expressed a desire to become a parent during consultation
Key exclusion criteria (2 listed)
- No desire to become a parent or missing data
- Missing data
Eligibility is decided by the study team after screening; this overview does not establish that a patient qualifies. Full inclusion and exclusion criteria.
Primary outcome
Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents
Time frame: Up to 24 months
Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents: Example: If 10 women try to have a child and 3 succeed, the success rate is 30%.
Results and safety
This study is still under way. Results are not available in the source record yet.
Research links
- Official record on ClinicalTrials.govLast updated by the sponsor 15 Jan 2026.
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Referral and contact
AzTrials does not enrol participants or take referrals. Contact the study team or a site listed below; they decide who can take part.
1 site in 1 country: see every site and its status.
Questions about this trial
What is this clinical trial studying?
An observational study of Turner Syndrome, run by University Hospital, Strasbourg, France at 1 site in France.
The full registered description is in the About this study section and the official record.
Who may be eligible to take part?
The sponsor lists 4 inclusion and 2 exclusion criteria. Eligibility is decided by the study team after screening, so read the full criteria and contact a listed site.
Is this clinical trial currently recruiting?
The record says: looking for participants now, as of the sponsor's last update on 15 Jan 2026. Status can change between updates, so confirm with the study contact before making plans.
Where is the study taking place?
The record lists 1 site in France. Whether a site is taking part right now should be confirmed with that site. See every site.
What are the possible benefits and risks?
They depend on the study and the treatment, and no study can promise a benefit. The study team explains the known risks during informed consent, before anyone joins; the record itself does not list them.
Are results available for this study?
This study is still under way. Results are not available in the source record yet.
How can a doctor refer a patient or contact the research team?
Contact Thibault BAHOUGNE, MD (33 3.88.12.78.99, thibault.bahougne@chru-strasbourg.fr), or a site near the patient. AzTrials does not enrol participants or take referrals.
What does the primary outcome measure?
Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents (time frame: Up to 24 months). It is what the study was designed to measure, not a finding.
Where can I read the original study information?
Does a listing mean the treatment is approved or proven to work?
No. A listing means the study is registered. It does not show that the treatment is safe, works, or is approved by a regulator.
How often is this information updated?
AzTrials copies changed records from ClinicalTrials.gov every night and reloads the whole registry every week. The sponsor last updated this record on 15 Jan 2026.